"Corticobasal degeneration (CBD) is a rare progressive neurological disorder characterized by cell loss and deterioration of specific areas of the brain. Affected individuals often initially experience motor abnormalities in one limb that eventually spreads to affect all the arms and legs. Such motor abnormalities include muscle rigidity and the inability to perform purposeful or voluntary movements (apraxia)."
My mother was first diagnosed with Parkinsons Disease last 2016 But the doctor realized that her symptoms was suited more towards Corticobasal Degeneration. In a short span of a few months she couldn't write, her right hand started to have tremors and then she started having slow movement which progressed very fast. This caused her to lose her balance and one incident she fell and hit her head causing an internal bleeding. This made it worse as after being hospitalised, she couldnt walk or do basic stuff like showering and combing hair. She has been on wheelchair assistance ever since. Last 2018 she started losing weight drastically and she became bedridden and fully dependent to caregiver.
She was not able to eat on her own and later on she can't swallow her food. On December she was admitted to hospital for insertion of NGT, a special tube that carries food and medicine to the stomach through the nose.
On January this year, she was admitted to hospital again due to infection on her throat.
The doctor suggested to do a PEG, an endoscopic medical procedure in which a tube (PEG tube) is passed into a patient's stomach through the abdominal wall for feeding as it is more safer compared to an NGT as the NGT might relocate and go to her lungs due to risk of lung aspiration.
This leads me to a financial crisis as as my mother's medical bills and medications has been piling and I am not able to keep up with the finances as my savings are drying. My mother is currently taking 15 medications a day which cost 16,000 - 18,000 a month and relies on blenderized food from the hospital daily which cost 280 pesos a day and if there is no blenderized food, she has to take Ensure Gold milk every 4 hours which is not cheap 3,000 pesos in 1 Tin which can last 2- 3 weeks depending on intake. The doctor also recently added protein milk supplement so she can gain weight which needs to be added on her food intact which cost 3,800 pesos per month. My mother also uses up 6-8 packets of diapers a day which cost 4,650 pesos per month excluding underpads, wipes, Mineral water, Gloves, Suction Catheter, wooden cotton applicator,Plain Normal Saline Solution that we used to suction her mouth as well.
The doctor also recommended therapy 3x a week but I can only afford 1 time a week which cost 1,000 pesos per therapy session due to lack of finances. As a single mom I also supporting my 10 year old daughter single handedly.
I am planning to send my mother for operation this early July and the estimated cost for the operation, includes 50,000 for the operation itself.this does not include the doctor's fees, medications, room rates and laboratory test and future visits to the doctor/ medications.
I am asking help as this is my last resort I hope that you can help share this or contribute a little however small the amount I will be eternally grateful. Thank you and God Bless.
Update: Due to paypal issues we kindly ask you to donate via bank
Bank: BDO (Banco De Oro)
Account Name: Lourence Torio
Account #: 000 470 697 105
Account Name: Lourence Torio
Account number: 063 306 311 0265
THANK YOU VERY MUCH.