Living in the dark

Hi Everyone!

I have a very rare disease called EPP (Erythropoietic protoporphiria) from the age 2.

I can't go out to the sunlight, because it makes me feel, I am burning and if I am going out, for I have to for the sake of our children, I must bear the consequences of sore reddish hands and nose.

I am Bernadett Vadász from Hungary. My husband and I have 3 children, who may have the disease, but we cannot be certain of that till they reach age 10 for examinations.

We live in a 51 square meter flat which is on loan. The person in the bank told us, that even though we have a capital loan of 6,3 million, if we were to pay it back now, we must pay back around 8,8 million Forints. We have not the slightest savings, living from week-to week since I can't get a job with 3 small children especially not for night shift work. If you know of any work for me I would be gladly doing it if it is in between 4 walls.

I am desperate for help, any amount would help to decrease the loan would be like a little air between the gasps for I don't know what will happen to us, if we lose this little home for which we worked so hard.

Please excuse my spelling, if you would like more information about us please feel free to ask.

Thank you for reading my plead, I will remember all of you in my prayers.