Lili’s Life Changing CSF Leak Surgery Fund

Fundraising campaign by Lili R
  • ¥41,489
    Donated So Far

The campaign owner has stopped the page from accepting further donations. Please contact them if you'd still like to donate

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I went from being active and fully functioning to completely bedridden 24/7 in constant pain. Because of a lumbar puncture I am leaking spinal fluid really fast and I have to constantly lay flat to survive.

Things went from bad to worse when I was diagnosed with Adheasive arachnoiditis. A horribly debilitating condition that cause the spinal nerves to stick together and malfunction. The best way I can describe the pain is being torched, stabbed and electrocuted at the same time all over. I can’t sit, I can’t stand, can’t lay on my back.⁣ My feet are going numb and the nerves in my legs, tailbone and back are constantly burning and pulling. After going to every hospital in and outside of Tokyo for help I lost hope, because no doctor wants to/can treat this rare disease (caused by a doctor).

I should no longer do any more invasive spinal procedures because of the risk of aggravating the arachnoiditis, but I desperately need an operation to close the leak/s. Besides the surgery, my last hope is regenerative medicine like stem cells to stop progression of the spinal inflammation.

I am pushing away my pride to ask people to help me financially get to a hospital for CSF leak surgery. The two surgeons I have found that specializes in exploratory iatrogenic leaks are in America and Switzerland. I’m in contact with both. I will need a medical flight/go on a stretcher since I can’t sit up or walk.

I’m completely disabled fighting my hardest not to give up. I’m trying to survive minute by minute in unimaginable pain and suffering. I lost everything to this leak and adheasive arachnoiditis I don’t know what else to do but to reach out to you. Thank you from the bottom of my heart ❤️

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1.00 Swedish Krona =

0.096243266 US Dollars

12.309675 Japanese Yen

*please find the latest rate here:

https://www.xe.com/currencyconverter/convert/?Amount=1&From=SEK&To=JPY

___________________________________


Organizer

Donors

  • Anonymous
  • Donated on Mar 30, 2023
  • All the best

Amount Hidden
  • Anonymous
  • Donated on Mar 28, 2023
¥3000.00
  • Anonymous
  • Donated on Mar 18, 2023
Amount Hidden

No updates for this campaign just yet

Donors & Comments

11 donors
  • Anonymous
  • Donated on Mar 30, 2023
  • All the best

Amount Hidden
  • Anonymous
  • Donated on Mar 28, 2023
¥3000.00
  • Anonymous
  • Donated on Mar 18, 2023
Amount Hidden
  • Anonymous
  • Donated on Mar 03, 2023
  • I hope you get better

¥11000.00
  • Anonymous
  • Donated on Feb 06, 2023
Amount Hidden
Amount Hidden
  • Anonymous
  • Donated on Feb 06, 2023
  • I truly hope that you will get the treatment you desperately need soon. I’m so sorry for everything you are going through. You’re not alone❤️ I will post about your story in hopes that more people will donate.

¥3000.00
  • Anonymous
  • Donated on Feb 05, 2023
¥2000.00
  • Lena Okamoto
  • Donated on Feb 05, 2023
  • Get better girl, I wish you positivity and strength! We haven't met but hope you can receive a warm hug from me. Hope to see your new modeling pictures soon!

¥1000.00
  • Elsa A.
  • Donated on Jan 21, 2023
  • GoFundMe wasn’t taking my card details so I hope this works! You deserve to have your life back. Hope that little by little we can help reach your goal and start your healing process. You’re not alone! Big hug.

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Followers

8 followers
Ally Hongo
Cornelia Irbo
Nick Aria
Isao kawamura
Takashi koizumi
Maureen En
Natsumi Yamada
Ray Ajanourum
¥41,489
Donated So Far

No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities

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