Light up a life

hi everybody this is Zaiden. My beautiful, loving, adorable but most unfortunate 5 year old. In 2009 my little boy was born with a very rare liver condition named BILARY ARTRESIA in which it attacked and poisoned his liver. At first the Reading Berkshire Hospital were oblivious to this condition and originally put it down to him being born Journdice. If found early there was a possibility we could of saved the liver by carrying out an operation named a KASAI. So on December 23rd that 2009 he went for his first operation. It was obvious within a few weeks that the operation was not succesful and that he would most defiantly need a new liver donated to him as he was infact dying, the longer it went on for the more poisoned his liver would get. He was immediately put on the NHS high priority transplant list in England in which i frantically wished and hoped for something positive to happen for him. We went a whole 9 months and then on the night of September 2nd 2010 we recieved a call from Kings College Hospital in London explaining that a liver had been acquired and that we needed to get ready immediately and wait for an ambulance who is going to rush us to hospital in London for the life threatening transplant. The operation was successful but the day after it while in recovery he developed too much fluid on his lungs in which they collapsed leaving him on the breathing ventilators. Kings then performed a chest drain on him which then led to somehow his bowel bursting and him suffering a cardiac arrest and them having to rush him into emergency theatre and do life saving acts of medicine on him. After saving him he then developed a blood clot on the brain from having too high blood pressure which led to the clot bursting and him becoming brain damaged. They woke him up out of his 3 week coma miraculously on his 1st birthday and that is the day in which we all believe someone up above gave him his new life. The damage to the brain was to one side of head which has caused him to become highly autistic. Zaiden don't talk, he don't walk but we have been trying to teach him and motivate him. he has so few ways of communicating. He has a 10 year old brother. He enjoys sensory, music, tv, Disney and going on drives. Zaiden is a slow developer and is only 24 pound but that is certainly a big difference compared to what he was when was dying. His diet we try to keep as healthy as we can as we believe that the better we feed him the healthier the liver will be and the longer he will live. They have said that the liver will not last forever and he may one day need another transplant, it could be when he is 7, 15 or even 20 but one day he will definatly need one. Between september 2010 to december 2014 we have had liver rejection more then a handful of times as well as 2 life threatening seizures in which the last one he very nearly died as he was fitting for more then 1 hour. In the end they had to perform an adult procedure on him by drilling medication into his shin to save him which fractured his leg. That was 7 months ago and he still hasn't really recovered from it and refuses to put any kind of weight onto it or let anybody touch it. He hasn't been diagnosed with epilepsy and has a number of brain activity scans and still no idea what causes the seizures but they said the next one could take his life. Zaiden is on anti rejection medication that costs around £420 a bottle named Tacrolimus and will be forever. On December 8th 2014 he suffered what is believed to be Anaphylaxis shock which is a serious and also life threatening allergic reaction. He was put into ICU and put on the life support machine and transferred from Reading to Southampton General Hospital to be cared for. The cause is believed to be avocado and will hopefully be confirmed in a few weeks after an allergy test Is performed by Kings College Hospital. He is now back home with us hopefully looking forward to Christmas and new year together. what I am fundraising for is a better life for Zaiden and for him to experience things me and his father could never possibly offer. He has never been on holiday or away as we never have spare money after we have paid bills, general living and us providing the best of everything for zaiden. There are things that I would love Zaiden to own things such as a tv his own wheel chair and not a goverment owned one and new shower room or bath that is accessible for him. as for going away and never worrying about funds with him, that has never happened. His father does security and is on a 0 hour contract and gets work when they offer it to him. I work in medical records in a hospital and we just about get by. We have minor debt due to the nice life we offer Zaiden but I would rather the debt then the knowing our child got to experience nothing with us while he was living. He is so cute and looking at him you wouldn't think that such a beauty suffered in so many ways But it seems as that is just life. We believe that it is a test in life and I like to think we are doing a pretty good job at it.  If you do decide to fund a better life for Zaiden then you will be acting out a very good deed in life and will most definitely be rewarded with some goodness in your after life. Zaiden will be thankful and most of all us his family who would feel relaxed and not worried about struggling with money for him. You would be helping a child who is in fact helpless and not aware of what great life is on offer out here for him. Any given amount donated would be highly appreciated as we could fund for Zaiden to have a much more and entertaining better life. Thank you for taking time to read