Picture from last year's ride I was unfortunately not part of
2019 Liberate Life Charity Ride
Together with a team of colleagues from Sobi I will be cycling from Bonn to Hamburg, a ride of 460 km. The ride take place 29th of Aug to 1th of Sep in order to raise awareness and funds for European Haemophilia Consortium (EHC). The funds will be used to help patients to live active life full of physical activity,
Working as business support for Haemophilia organisation I find it rewarding to give back to the Haemophilia community in a very direct way. To hear the stories what an improved treatment can mean for a patient inspire me to raise awareness for, and also encourage haemophilia patient to try live an active life with no restriction due to their condition.
About the EHC
The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 46 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe. The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease (VWD) and other rare bleeding disorders across Europe. However, it is estimated that many more live with an undiagnosed rare bleeding disorder.
Haemophilia is a type of bleeding disorder in which the blood does not clot properly. When a person with haemophilia bleeds it takes longer than normal for the bleeding to stop. This is because people with haemophilia don’t produce enough of an important protein that helps the blood to clot, called a ‘clotting factor’. Haemophilia is a rare disease that is usually inherited and is more common in males than females.
At Sobi, we are transforming the lives of people affected by rare diseases. As a specialised international biopharmaceutical company, we provide sustainable access to innovative therapies in the areas of haematology, immunology and specialty care. We bring something rare to rare diseases – a belief in the strength of focus, the power of agility and the potential of the people we are dedicated to serving. The hard work and dedication of our approximately 1050 employees around the globe has been instrumental in our success across Europe, North America, the Middle East, Russia and North Africa, leading to total revenues of SEK 9.1 billion in 2018. Sobi’s share (STO:SOBI) is listed on Nasdaq Stockholm. You can find more information about Sobi at www.sobi.com.