Liberate Life bike ride Bonn to Hamburg
Fundraising campaign by
Marijn van der Sluijs
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€325.00raised of €360.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
Campaign Story
Together with a team of Sobi colleagues, I will be cycling about 520 km from Bonn to Hamburg from August 29 to September 1, 2019 in order to raise money for the European Haemophilia Consortium (EHC). The funds will be used to support projects for increased physical activity and an active life style for people with haemophilia.
This is the fourth stage of the Sobi Charity Bike Ride for Haemophilia that started in 2016 from London to Paris, continued in 2017 from Paris to Brussels, then in 2018 from Mainz to Brussels. So far I have participated in all three previous rides and look forward to adding a couple of 100 kilometres more to the around 1100 kilometers covered in previous years!
About the EHC
The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 46 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe. The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease (VWD) and other rare bleeding disorders across Europe. However, it is estimated that many more live with an undiagnosed rare bleeding disorder.
About haemophilia
Haemophilia is a type of bleeding disorder in which the blood does not clot properly. When a person with haemophilia bleeds it takes longer than normal for the bleeding to stop. This is because people with haemophilia don’t produce enough of an important protein that helps the blood to clot, called a ‘clotting factor’. Haemophilia is a rare disease that is usually inherited and is more common in males than females.
About Sobi™
At Sobi, we are transforming the lives of people affected by rare diseases. As a specialised international biopharmaceutical company, we provide sustainable access to innovative therapies in the areas of haematology, immunology and specialty care. We bring something rare to rare diseases – a belief in the strength of focus, the power of agility and the potential of the people we are dedicated to serving. The hard work and dedication of our approximately 1050 employees around the globe has been instrumental in our success across Europe, North America, the Middle East, Russia and North Africa, leading to total revenues of SEK 9.1 billion in 2018. Sobi’s share (STO:SOBI) is listed on Nasdaq Stockholm. You can find more information about Sobi at www.sobi.com.
Organizer
- Marijn van der Sluijs
- Campaign Owner
- Sollentuna, SE
Donors
- john Stevens
- Donated on Sep 03, 2019
- Lena Sörskog
- Donated on Sep 02, 2019
Well done!
- Anonymous
- Donated on Aug 31, 2019
Well done - organizing and excecuted such important initiative!
Yes, we did it!
Update posted by Marijn van der Sluijs at 09:21 amOver the finish line: the team reached Hamburg on Sunday 1 September after the 520 km Sobi Liberate Life Bike Ride from Bonn. This was the fourth Sobi charity ride, raising funds for the European Haemophilia Consortium, as well as spreading the word about haemophilia and the benefits of an
Donors & Comments
- john Stevens
- Donated on Sep 03, 2019
- Lena Sörskog
- Donated on Sep 02, 2019
Well done!
- Anonymous
- Donated on Aug 31, 2019
Well done - organizing and excecuted such important initiative!
- Katrin Andren
- Donated on Aug 30, 2019
Good Luck!!
- Anonymous
- Donated on Aug 29, 2019
- Yvonne Johnsén
- Donated on Aug 29, 2019
- Anonymous
- Donated on Aug 26, 2019
Go Marijn!
- Anonymous
- Donated on Aug 26, 2019
- Anonymous
- Donated on Aug 22, 2019
Succes!!
- Carin Junestrand
- Donated on Aug 21, 2019
Great that you do this and have a successful ride!