Little Liam is 2 years old, he was born with amniotic banding on both his legs and club feet,
he has been to specialist after specialist both private and state,
Amniotic Band Syndrome occurs when the fetus becomes entangled in fibrous string-like amniotic bands in the womb, restricting blood flow and affecting the baby’s development.
Little Liam has had ponsetti treatment from 1 week old to 10 months old with no improvement,
Ponsetti treatment is a "new" treatment brought to South Africa, basically what the doctors do is they manipulate the feet/ankles and bend them in the correct position, then they place casts on from the nappy down just past the toe. Each week they take the old cast off and manipulate the feet a little more out and recast the feet/legs.
This treatment is supposed to take between 6 to 7 weeks then they operate,
The doctors told us at the state hospital that they can not help us any further with the ponsetti treatment, as the amniotic banding causes a restriction of blood flow to Little Liam's feet causing terrible pain and makes his feet swell more then they normally are also his feet are to severe...
They also don't have the doctors/specialists to help with any operations (the know how if i can call it that)
The specialists have told us that Liam's feet are to severe and the only thing that will help is to have more operations,
Liam has already had 2 operations on his amniotic banding (August 2014 and September 2014 ) however he is still needing 1 more on his amniotic banding to release the restriction and allow the blood to flow freely to his feet
The specialists have told us that Little Liam will need operations on his club feet if he is ever to walk pain free one day,
On Saturday (19th September 2015 ) Liam had the first operation on his club feet at St Georges Hospital. the doctors cut all tendons in Little Liam's toes, bridge of feet and heels. They also placed pins in each foot and applied a cast on each leg/foot.
On Friday ( 2nd October 2015 ) (2 weeks after the first operation)
Liam had his second operation on his feet at St Georges Hospital. The doctors cut the old cast off, they had to unfortunately remove one of the pins from Little Liam's foot due to infection. They used the remaining pins to pull Little Liam's feet outwards and up to straighten his feet, and applied a new cast.
On Friday (30th October 2015)(4 weeks after the 2nd operation) Little Liam had his 3rd operation, at St Georges Hospital. The doctors removed the casts, removed all the remaining pins and placed a new cast on both Little Liam's feet.
On the 9th of December 2015 Liam went to his doctor to have his casts removed. The doctor was very happy with the outcome so far, as there is a huge improvement. However Liams feet are still pointing inward very badly.
Liam has a follow up visit in February 2017 with both clubfeet specialist who operated. They will assess his feet and make the final decision on his next operation.
Liam's last operation on his club feet (tendon transplant) will be to concentrate on pulling his feet outward in the "straight" position.
The doctors have said they will need to cut the top, front of both feet. Doctors will lengthen the tendon in the bridge of his feet (again) and transplant the tendon to the middle, top of his feet, this will allow the feet to pull them self outward as he grows. The doctors will recast his feet (not sure for how long) but only half leg meaning from the knee down to the toes.
Once Liam's feet are straight we will be going to see his plastic surgeon for our last operation to correct the remaining of the amniotic banding and to remove the last stitch that has not been able to work its self out of Liam's leg as yet. The stitch that is still "stuck" causes infection as bad as even cellulitis infection.
At this point we have run out of all resources. We have contacted every medical cover possible to try and get Liam covered but have been told that this is a pre- existing condition and they will not cover.
Little Liam is needing all the help he can get if he is ever to walk pain free and lead a normal life.
All Liam wants is to be able to walk, and run pain free with his older brothers.
Something so simple that so many of us take for granted, the ability to WALK!
At the moment we are trying everything we possibly can to raise the funds for Liam's tendon transplant...
Lets stand together and help this little angel so that one day he will be able to walk pain free and lead a normal life
Little Liams hospital savings account
Liam Blake Jansen
Absa savings account
Acc no 9308991471
Little Liams paypal
Npo registration no 2005/018447/08