Rayan, is a five years old boy (Oct 24, 2014). He is my second son.
Despite of being an energetic and happy kid he has not been enjoying his childhood for past 2 years since he was diagnosed with cancer (High-Risk Neuroblastoma). He has been suffering a lot, so our family did too. He is a strong hearted kid. He is fighting so hard, so we do. We are all fighting for his survival.
He had a very tough and stormy 18 months. From very frequent chemotherapy sessions to surgery and bone marrow transplantation, spending plenty of days and nights in intensive care unit under severe isolation, home intensive care , plenty times of various types of C.T Scan, PET Scan, MRI, Bone Scan, and ...
After all, despite of enormous expenditure effort and struggle, his situation enhanced up to 20% .
Doctors recommended that we continue treatment though immunotherapy with anti-GD2(DINUTUXIMAB) 90 days after bone marrow transplantation.
There is a brand new method for High-Risk Neuroblastoma in which through enhancement of Anti Bodies, chances of a successful treatment can reach to more than 70%, which means a miracle.
We are Hong Kong residents and Rayan is preparing for the immunization treatment at the hong kong Children's Hospital.
While Rayan can receive services with no charges at the HKCH because he will be subsidized through HK Government, but the super costly medicine, Unituxin (DINUTUXIMAB) is not yet subsidized by the government-supported drug list, so we need to pay for it by ourselves.
As a prerequisite for the treatment Rayan has gotten IV port in his arms, so he is ready to start the treatment ASAP.
Delays could cost Rayan his life. Neuroblastoma stage 4 is within the high-risk category and engages other organs in the body, such as the bone and bone marrow. He needs care and treatment urgently before relapse.
Every single hour is vital.
As his father I made my best effort to afford his charges so far. I have spent all my savings including properties, vehicles and cash for his treatments so far and now I’m about to be a broke! Last months, we have spent all we had on his medications and treatment.
Now this page is our major chance to share our story with kind and philanthropic people and seek a helping hand, because, I know I can never pay HKD$1,750,000.
The cost for immunotherapy would be different depending on the respond from his body but the rounds and the dosages of medicine has been suggested by his Doctor.
As mentioned in the document issued by the hospital the antibody treatment (Dinutuximab) has schedules as a 5days course for 5 cycles in 5 months that the cost for each cycle will be around HKD$350,000.00,(four doses) and the Total : HKD$1,750,000.00 for 5 cycles.
Rayan的免疫治療Unituxin (DINUTUXIMAB) 藥費包括在5個月內進行5個循環的注射，每個循環為期5日，每個循環藥費港幣35萬，完成5個月療程共175萭。其實最終藥費支出會視乎Rayan的身體反應，這個費用是主診醫生現時的估算。
Thus, this treatment is our last hope to save his life. Please do not underestimate your power of help. Your supports to rayan will surely enhance the development for him.
- Help us to save him.
We thank you wholeheartedly, for reading this. We hope you can also help us with your kind and generous donation and also forwarding this message to anyone who may be able to help.
If you have any questions or need further information, please feel free to contact me.
You can also get more information from the Hong Kong children Hospital, 5W ward.