Leon has Microcephaly and agenesis of the corpus collosum. He needs a scoliosis correction he is at 89 degrees. Dangers are displacement of organs and paraplegia, he therefore needs an operation that costs R 300 000.00 to correct his spine. Unfortunately the medical aid does not have a code for this rare condition and hence will not cover the cost. We are also busy with rare diseases SA however this is an operation that needs to be done as soon as possible due to the severity of his condition. He is a happy little boy who turned 14 on 01 May 2017 - Leon functions at about 5 or 6, he cant speak yet and started walking at 6 and potty training at 8. We are actively trying to raise funds needed and hence ask for any and all support.
