Leanne s Brain Tumour Appeal

Update posted by Leanne Lyon On Feb 01, 2017

Please read the article found in this mornings mirror online

http://www.mirror.co.uk/news/uk-news/mum-whose-tum...

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Update posted by Leanne Lyon On Jan 08, 2017

Here is the link to the Interview I had back in August for a T.V program called Astonishing News that went out on the 21st September 2016.

My interview starts at 36 minutes and 36 seconds, into the program until the end, including reconstruction and advert's

http://www.dailymotion.com/video/x4u2zf1

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Update posted by Leanne Lyon On Jan 08, 2017

Here is the link to the Interview I had back in August for a T.V program called Astonishing News that went out on the 21st September 2016.

My interview starts at 36 minutes and 36 seconds, into the program until the end, including reconstruction and advert's

http://www.dailymotion.com/video/x4u2zf1

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Update posted by Leanne Lyon On Sep 10, 2016


On Saturday 3rd September, I spoke to Hanna (phone), and apparently those who seen what was recorded was so shocked, they wanted to come back for more. This time for eight hours.

It was a long day, but they caught a small seizure in The Drover's Return, where we go for our lunch, plus there's a flyer of mine on the board

Everything seemed to be going fine really (unfortunately for them). Once I'd put my daughter to bed, my carer went home...my fault entirely.

After that I can't remember a thing due to a different type of seizure.

In a way I'm glad it happened for them. As for me I don't remember a thing. But they was very kind and stayed until Dave got home....although I was ok by then. They have taken twenty-four photo's of me through my life as there will be a reconstruction, plus they also have some up to date photo's I've emailed.

They will be sending me a copy of all this when it's been edited, plus it will be very interesting to see, and hopefully help raise awareness of Hypothalamic Hamartoma's in Japan

www.leannebraintumourappeal.co.uk

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Update posted by Leanne Lyon On Aug 25, 2016

Tomorrow 26th August, I have got a couple of people coming around to my house to video myself and my life, children & carer.

At first I thought this was for a medical programme, but no, it's a 13 minute Drama about my condition / past and present. This will only go out in Japan, a programme called Astonishing News. They are also paying £700 for my fund.

Then on the 31st August (Next week), myself and mum will be picked up and escorted to the Jeremy Kyle's Emergency Room ready for 1st September before Interviewing us etc... and bringing us home.

Can't believe it's all happening at once

www.leannesbraintumourappeal.co.uk

Finger's crossed feeling #nervous #positive

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Yesterday went very well indeed. It only lasted only 4 hours not 5 as I was told. I was the first to have an Interview followed by my mother and then children who done very well indeed. I done everything they asked and even had three seizures which got caught on camera.

Leanne Lyon

Update posted by Aug 27

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Update posted by Leanne Lyon On May 21, 2016

Last Saturday I had an event at my Children's School. Then on Sunday I received a phone call from an International Reporter.

I sent as much information to them as possible i.e. blogs photo's information on HH etc..., followed by a Photographer on Tuesday.

Yesterday (Friday) it was put online.

Here are the links found so far

http://www.mirror.co.uk/news/uk-news/mum-says-tumo...

http://www.thesun.co.uk/sol/homepage/news/7163201/...

http://www.express.co.uk/news/uk/672330/Mother-suf...

By reading those it sounds like my life is over. NO, it's just a risk when I'm out alone. But what i hate is 10 years on and I still cannot take my children out alone. Had I of known this was how it was going to be I wouldn't of had my children. But there my world now and my carers when they have to be. But it's not fair on them.

I know I'm an Adult but I'm not trying to get better just for myself, but for my children and to live a proper life like any other Mother would. :'-(


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Update posted by Leanne Lyon On May 20, 2016

Saturday was my second time of raising money for my cause, plus raising awareness of Hypothalamic Hamartoma at my Children's School. This year you helped raise £140.00 so thank you all.

I made sure I gave flyers out to all our customers in hope they will read about my condition and help raise awareness to others.

I would also like to thank Kieran & Megan Lyon, my two little supporters on the day.

But a huge thank you goes to the PTA / Duston Eldean Primary for having me again

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Update posted by Leanne Lyon On Apr 23, 2016

We have now added up all the money from my last event on March 26th, including donations for this event and raised £797.50.

I'm still in shock myself as I'm an individual and have had no help what so ever in the past with Fundraisers, but thing's are going to change. I already have a stall in May at my Children's School plus I have an event up my sleeve for July.....hopefully. Watch this space xx


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Anonymous

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Leanne I had no idea that you are dealing with this condition - if I can do anything to help fundraise I am more than happy to help you out !! Good luck Katie (Harry's mum)

Katie Rake

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Good luck.

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