Lamitta is a beautiful bright little girl with her whole life ahead of her. She loves meeting people, she loves to sing, loves to want to dance, loves to play instruments, loves music, and she is very anxious to learn, especially learn how to be independent.
Lamitta was born September 28th, 2010, pre-mature at 28 weeks at 2.2lbs and was admitted to Neo Natal incubation for 54 days until she was ready to come out in the world.
At 7 months old, we started noticing that she was not able to function her body as a 7 months old would. After many pediatrician appointments, finally at approx 14 months old, it was recommended by the pediatrician that we do an MRI. That MRI came approx. 4 months after it was referred.
The findings of the MRI, were that Lamitta has had some brain damage at birth which lead to her having Cerebral Palsy, secondary to periventricular leukomalacia, (spastic diplegia). At which point we were finally referred to a Physiotherapist Centre & Treatment Centre for children born with special needs.
After many physiotherapist, occupational and speech therapy appointments, that we are still doing for her, Lamitta, now 7 years old, is still yet to have any control over her gross motor skills. She is not able to sit, roll over, crawl or support herself in anyway. Along with the disability, Lamitta has developed a few other medical complications, such as kidney stones, asthma, acid reflux,spina bifida occulta, slight visual impairment and most recently anxiety. Aside from all this, she still a very happy girl, full of life and always manages to brighten up our days.
As Lamitta is getting older, her body is growing, however her muscles are not growing with her body.
She is getting heavier, it is becoming more difficult for her to stretch her arms and legs. Lamitta needs support for all the things necessary such as feeding, clothing, drinking, bathing etc. She requires 24 hour attentive attention. Even during her sleep, she is not able to turn over on her own to get into a more comfortable position and this wakes her up at night several times.
Lamitta did a surgery called selective dorsal rhizotomy and ventral rhizotomy and muscle lengthening and she needs a lot of physiotherapy now a session everyday for 4 year so she can be able to walk or stand on her own and live in a better quality of life.
The therapy is not funded by government.
Physiotherapy at home will cost 5200 $ per month.
Thank for your help and support.
God bless you all.