Help KEN-KEN WIN against BONE CANCER (bilateral osteosarcoma) #KenWinAgainstCancer

Update posted by Kirt Russelle Peconada On Oct 24, 2018

Ken-ken finished his 2nd chemo cycle last October 17 and was immediately discharged on the 18th, with normal electrolyte levels and blood tests.


He had his follow-up check up yesterday, October 22, and is scheduled for his next line up on October 31 and on November 3, he'll be on his 3rd chemo cycle.

He also started catching up with 3rd grade school work at home and is doing well so far with his lessons. In 2nd grade, he finished 8th in his class ^_^


As with his protocol, his doctors will decide on the type of surgery to be performed after 3 chemo cycles, which we estimate will be performed in December.

Ken-ken's 9th birthday, however, is on December 23, a day before Christmas eve. If his surgery does happen in December, it is highly likely that he'll spend some weeks in the hospital for recovery.

It's kind of sad to be spending both Christmas and Birthday in the hospital, but we remain hopeful that Ken-ken will get through ok.

Going into his 3rd chemo, we are scared of what type of surgery will be performed.

We are scared of how Ken-ken will feel before and after the possible loss of both his legs, down below his knees as a result of rotationplasty or whatever his doctors will recommend for his case.

But in keeping with the spirit of Christmas, we shall remain faithful that whatever challenges may come his way, we will overcome these with him.

Please, if you can spare a little for his cause, you may donate or contact us to know of other ways you can help. Out-of-pocket costs for hospital admissions and visits are starting to pile up. And we expect these to increase significantly once Ken-ken undergoes surgery and recover for several weeks.

Thank you so much!


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Update posted by Kirt Russelle Peconada On Oct 16, 2018

Ken-ken's fever finally went away on Friday last week, and he was immediately started on his 24-hr cisplatin infusion, followed by 3 days of doxorubicin infusion, split into 2 infusions per day lasting 4-hrs each with a 12-hr interval between each infusion.

Before the start of his 2nd chemo cycle, his appetite was returning to normal. Here he is smiling after having a blood transfusion and waiting for his requested chicken dinner to be served:


However, as soon as he was started on doxorubicin, his appetite started to decline again as well as feeling tired almost all the time.

Still, we are faithful and hopeful that he'll complete his protocol without any serious troubles nor any delays <3

To loving you, Ken.

Keeping up with daily expenses is difficult for his family, especially since his papa can rarely find time to work as a pedicab driver anymore. His mama tries to squeeze in some finances through various sidelines such as direct selling of products.

We will be very thankful for any help you wish to send our way, for Ken-ken's WIN against cancer.

#KenWinAgainstCancer #childhoodcancer #osteosarcoma #fuckcancer

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Update posted by Kirt Russelle Peconada On Oct 09, 2018

Last October 3, 2018, Ken-ken was admitted back to the Children's Cancer Institute (CCI) at the Southern Philippines Medical Center (SPMC) for his 2nd chemotherapy cycle.

However, on that same night, he got feverish and his electrolytes were below normal so he wasn't immediately started on chemo. Over the weekend, his fever went away and was moved to a clean room in preparation for pre-hydration. His magnesium and potassium levels were still low so he was prescribed some meds to correct these.

He wasn't feverish for the rest of Saturday and Sunday, so we were hopeful for him to start chemo by Monday.

However, on Monday night, he got feverish again and by early morning today, he was moved to an isolation room to be monitored closely.

Going into 2nd chemo, still feverish

#KenWinAgainstCancer #childhoodcancer #osteosarcoma #fuckcancer

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Update posted by Kirt Russelle Peconada On Oct 01, 2018

Ken-ken's schedule for the week will be the following:

  1. Follow-up check-up on October 2, 2018, a day before his 2nd chemo infusion; and
  2. Chemo infusion with cisplatin and doxorubicin on October 3 and the days that will follow, under his usual protocol.

He's already lost his hair as side-effect of the chemo, but he's being cool with it. He dislikes having his pictures taken and often finds it irritating, so we skipped photo documentation for now.

His biopsy wound has healed considerably, but the blue stitches are still there. Perhaps until definitive surgery.

We are all taking part in his treatment, but sometimes, we find ourselves lost and fearful of the outcome. However, we try our hardest to stay positive and strong for Ken-ken.

He's our own beacon of hope in this dark time and we will always be there for him, no matter what.

We know donations aren't coming as frequently as it used to for the first week when his page was up, but we continually hope for some good-hearted people to at least share his story and page so that we can reach a wider team-base.

Please, for a little bit of your time, share his page among your friends, groups, colleagues and community. We can use all the help we can get.

Thank you and lots of love from Ken-ken and us.

#KenWinAgainstCancer #childhoodcancer #osteosarcoma #fuckcancer

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Update posted by Kirt Russelle Peconada On Sep 23, 2018

It has been a week since Ken-ken's first chemotherapy cycle with cisplatin and doxorubicin. Immediately after chemo, his sodium levels were below normal, but his appetite was slowly returning. His doctors had to delay his discharge from the hospital, but he was finally cleared to go home last Tuesday.

At home, his mood is much better and his appetite is as normal as we'd expect it to be. Except for the bilateral tumors on his legs, he appears to be like any other kid without cancer all over. But we know that the real battle is inside the cells in his body - the tumor cells, to be specific.

A week after his first chemo, Ken-ken seems to be generally well. We continually hope and pray that he'll get through the whole treatment and triumph over osteosarcoma.

For all those wondering about his case, we present to you the following photos:


A few strands of hair? It's too soon to tell, but he hasn't lost his hair as of today.


A little appetite for some merienda.


And always the best smile in the world.

Keep your kind donations coming! And thank you for helping Ken-ken win against osteosarcoma!

#KenWinAgainstCancer #childhoodcancer #osteosarcoma #fuckcancer

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Update posted by Kirt Russelle Peconada On Sep 20, 2018

For all those days we spent together, Ken, before cancer made you ill, it's good to look back at some of your happy moments, di ba?

We build on our past and look forward to your future

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Mahilig ka sa ice cream, Ken.

Pero ngayon, medyo wala ka nang gana sa matatamis. Minsan ay nasusuka ka pa nga kahit tubig lang.

Pero yung di rin siguro madaling makita ng iba, ay ang iyong mga mata. Minsan ang lalim ng iniisip at minsan din ay ang kulit ng liwanag ng mga ito.

Laban, Ken. Para sa ice cream and for the future you see through your eyes.

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HELP US WIN THIS BATTLE

Paypal: https://gogetfunding.com/kenwinagainstcancer/
Bank deposits / transfers:
Account name: KIRT RUSSELLE C. PECONADA
Bank of the Philippine Islands (BPI) Acct: 8669116382
One Network Bank Acct (ONB): 041250009454
Palawan/Cebuana/any pera padala or money transfers:
Receiver: KIRT RUSSELLE C. PECONADA
Contact no. 09955142466

You donations:
https://docs.google.com/…/1edggGWBNTs7KW2F25W731JT1A5…/edit…

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Connect with us:

Gogetfunding: https://gogetfunding.com/kenwinagainstcancer/
Facebook: https://www.facebook.com/kenwinagainstcancer/
Facebook: https://www.facebook.com/kirtrusselle
Facebook: https://www.facebook.com/groups/kenwinagainstcancer/
Instagram: @kenwinagainstcancer
Email: [email protected]
Mobile: +639955142466
Mobile: +639090564285

Ken-ken's Facebook: https://www.facebook.com/kleentdexter.delacruz

#KenWinAgainstCancer

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Update posted by Kirt Russelle Peconada On Sep 17, 2018

This week's update - #KenWinAgainstCancer

1. We have the official MRI result - bilateral osteosarcoma, both distal humerus

2. We have the official bone scan result - osteoblastic activity involving distal end of both femur

3. We have the official CT scan result - no noted lesions nor pulmonary mass

4. We have several plain x-ray results - no remarkable findings

5. Ken-ken did his 1st cycle of cisplatin and doxorubicin - no noted adverse reactions, except for infrequent throwing up

6. He is scheduled for his 2nd cycle after 21 days or so.

Overall, Ken-ken's response to his first cycle is great. And besides the already noticeable lump on his two knees, there have been no other findings on his imaging studies.

But, his appetite is down and he really needs to up his food and water intake

We have yet to receive our first medical bill, but no matter the cost, we will see this through

Very good, Ken, kay ok imong pag receive sa imong 1st chemo cycle, kaya nimo na ha

Daghan pa tag agihon pero salig lang ha.

For us to be strong, you need to be stronger, Ken

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WAYS TO DONATE:

Paypal: https://gogetfunding.com/kenwinagainstcancer/
Bank deposits / transfers:
Account name: KIRT RUSSELLE C. PECONADA
Bank of the Philippine Islands (BPI) Acct: 8669116382
One Network Bank Acct (ONB): 041250009454
Palawan/Cebuana/any pera padala or money transfers:
Receiver: KIRT RUSSELLE C. PECONADA
Contact no. 09955142466

You donations: https://docs.google.com/…/1edggGWBNTs7KW2F25W731JT1A5…/edit…

********************************************************

Connect with us:

Gogetfunding: https://gogetfunding.com/kenwinagainstcancer/
Facebook: https://www.facebook.com/kenwinagainstcancer/
Facebook: https://www.facebook.com/kirtrusselle
Facebook: https://www.facebook.com/groups/kenwinagainstcancer/
Instagram: @kenwinagainstcancer
Email: [email protected]
Mobile: +639955142466
Mobile: +639090564285

Ken-ken's Facebook: https://www.facebook.com/kleentdexter.delacruz

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Update posted by Kirt Russelle Peconada On Sep 11, 2018

Hi all!

Seeing that not everyone is familiar with online donations and Paypal and to save on fees and charges from online transactions, you may send your donations as follows:

Account Name / Receiver: KIRT RUSSELLE C. PECONADA
Bank of the Philippine Islands (BPI) Acct. No.: 8669 1163 82
One Network Bank (ONB) Acct. No.: 041250009454

For direct money transfers (i.e., Palawan, Cebuana, ML, RD, Western Union, etc.):
Receiver: KIRT RUSSELLE C. PECONADA
Address: DAVAO CITY
Contact No.: +639955142466

Contact us ahead of time for us to monitor any help you wish to send our way.

Email: [email protected]
Facebook: https://www.facebook.com/pg/kenwinagainstcancer
Facebook: https://www.facebook.com/kirtrusselle

#KenWinAgainstCancer

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Update posted by Kirt Russelle Peconada On Sep 10, 2018

You may click on the following link to a spreadsheet summary of all online donations and disbursements thus far:

https://docs.google.com/spreadsheets/d/1edggGWBNTs...

Paypal activity as of Sept 9, 2018 follows:

Donors' identity were hidden to protect their privacy.

Thanks so much for all the help!

Check out Ken-ken's facebook page for more updates on how you can help him in his WIN against osteosarcoma!

https://www.facebook.com/kenwinagainstcancer/

#KenWinAgainstCancer

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Update posted by Kirt Russelle Peconada On Sep 10, 2018

This week's update on #KenWinAgainstCancer

1. Out of the total online donations received, P1,290 was spent on his MRI contrast gadoteric acid and P1,300 was paid for the reader's fee. This is aside from the fees charged by Paypal for receiving and transferring funds. Daily expenses for food and fare are not sourced from donations and are out-of-pocket costs.

2. Ken-ken had his MRI last Tuesday, pending official results.

3. Ken-ken had his chest CT scan last Friday, pending official results.

4. He had his 2nd biopsy yesterday, pending official results.

5. He is already due for chemo within the next 24 hours and as soon as his fever goes away.

6. He is being scheduled for a complete bone scan at another hospital, and the cost has already been guaranteed by the House of Hope for children with cancer.

And as always, we keep saying our prayers, together with you, for Ken-ken's complete healing and recovery.

Ways to donate:
Paypal: https://gogetfunding.com/kenwinagainstcancer/
Bank deposits / transfers:
Account name: KIRT RUSSELLE C. PECONADA
BPI Acct: 8669116382
ONB Acct: 041250009454
Palawan/cebuana/any pera padala or money transfers:
Receiver: KIRT RUSSELLE C. PECONADA
Contact no. 09955142466


Check out his facebook page at:

https://www.facebook.com/kenwinagainstcancer/

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Had some extra this month. Hope you are all well! Merry Christmas.

Ben Traje

Backed On Dec 03, 2018 Amount Hidden

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Please share this page with your friends and colleagues. The more we are in Ken-ken’s team, the better chances he has at WINNING in this battle and in his future endeavors. #KenWinAgainstCancer #childhoodcancer #osteosarcoma #fuckcancer

Kirt Russelle Peconada

Posted On Sep 25, 2018

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Thank you all for the overwhelming support for Ken-ken and his family. He already did his first chemo cycle and his response to the drugs was generally ok. He will be scheduled for his next cycle in about 21 days or so. As of this writing, Ken-ken’s sodium level is back to normal and we are already waiting for his doctor’s discharge order. His appetite is slowly returning to normal (having eaten a whole slice of his favorite pepperoni pizza last night) and he’s in a good mood. We have yet to receive our first medical bill, but like we said, whatever the cost, we will see this through. We hope for your continuing support by sharing the link to his fundraising page and enjoying each winning moment in his battle against osteosarcoma. Ken-ken loves to hear from all those who are helping him. Lots of love, you guys!

Kirt Russelle Peconada

Posted On Sep 18, 2018

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Get well soon young man

Crystal Candia

Backed On Sep 12, 2018 Amount Hidden

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I have lost my moms, yes - two moms - to Cancer. And I have witnessed how hard they've went through - emotional, spiritual, mental stress - not to mention the financial stress this dreadful disease brings to the family. I am hereby pledging to support Ken all the way. I hope this small amount may help the family in any way possible. God bless you Ken, God bless your family and may God bless all whom will help and pray with you.

Kassandra Milani Salvador

Backed with ₱1000.00 On Sep 12, 2018

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Anonymous

Backed with ₱1000.00 On Sep 09, 2018

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Wishing for fast recovery. I'm confident that your godchild will have a promising future under your guidance. All the best pre. Ben

Guest

Backed with ₱1000.00 On Sep 06, 2018

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We will post an update on the expenses sourced out from the donations received by next week, so as to provide full disclosure and accountability.

Kirt Russelle Peconada

Posted On Sep 01, 2018

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Thank you to all who have helped us so far in this win against cancer! Our deepest gratitude to all of you, really.

Kirt Russelle Peconada

Posted On Sep 01, 2018

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Anonymous

Backed with ₱500.00 On Aug 31, 2018

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Kirt Russelle Peconada

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I'm Ken-ken's ninong (godfather) and he means the world to me.

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Rea Pizarro

Following Since Oct 21, 2018

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Crystal Candia

Following Since Sep 12, 2018

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