Kaylees Ohtahara

Kaylee Morris is 10 years old anI was diagnosed with Ohtarhara syndrome when she was a fees months old.   Ohtahara Syndrome is a progressive epileptic encephalopathy. The syndrome is outwardly characterized by tonic spasms and partial seizures, and receives it's more elaborate name from the pattern of burst on an EEG. It is an extremely debilitating progressive neurological disorder, involving intractable seizures and severe mental retardation. No single cause has been identified, although in many cases structural brain damage is present. When Kaylee was 6 months olshaheed had to have the right side of her brain removed. Kaylee is a fighter and she has God on her side. My goal is to raise money to find a cure for this rare diesese. The only treatment for this dieses is anitiepiliptic medications and surgery. Kaylee has shocked most doctors and is walking talking and believe out or not she has a personality. She is an amazing little girl who still has a big fight to fight. She has to wear a brace on her left leg to help keep it straight as she walks and a brace on her left arm which she still isn't moving. I want to get kaylee in more therapys to help with the movement IMF her left side. We all try to give Kaylee a normal life.