Meet Katie-Grace Barrett.
Katie is 3 years old and has an undiagnosed neurological condition.
Katie has a severe movement disorder, epilepsy, visual impairment, reflux, global development delay and is fed by a tube in to her belly.
katie's movement disorder makes her muscles constantly contract, she cannot sit in a chair and struggles to even sit on her parents lap. She doesnt get to go out much because it causes her pain to be restricted in a buggy.
Katie is extremely motivated and so desperate to play, but held back so much physically.
We have been told by Great Ormand Street that there are no further medications they can offer to help Katie.
In June 2013 we enrolled Katie in the snowdrop therapy programme. This programme works on a neuroplasticity basis. But its not a quick fix and is gonna take some time before we see results, if any.
We would like to raise funds for Katie for the continuing need for equipment, therapy sessions and sensory items to help stimulate her.