For Continuous Medication: Justin’s Fight Against Kawasaki Disease

I'm Kristina Soriano, a mother of a 2 year old boy named Justin Isaiah Soriano, a healthy and happy little boy. We live in Metro Manila Philippines together as a small family (me, my husband Dino and Justin.

Recently(, my son got a high fever(103.2 F) and got hospitalized in The Medical City, Ortigas, Pasig Philippines, initial diagnosis was upper respiratory tract infection, based on the initial x-ray, he have some phleghm on his lungs and based on CBC test taken, the white blood cells gone higher(21) which indicates a bacterial infection. We are admitted to avoid dehydration and for medication (Paracetamol for fever, Ampicillin antibiotic and saline solution for nebulizer). a day passed, rashes like patches appeared on his feet and legs, mouth sores, drooling and non stop high fever, then the Pedia doctor said it was HFMD. We were moved to an isolated room as it can be contagious, and Ceterizine was added in the medication to relieve itchiness. The next day the rashes like patches appeared all over his body then suddenly, doctor said it was Measles eventually. The medication was kept for 3days to see the effect of antibiotic but his high fever still persist and now with difficulty in breathing and his face and eyes swollen. The Pedia doctor decided to seek advice on an Infectious diseases Specialist and the Specialist ordered to do blood test (CBC and ERS)again and x-ray. Blood test for Sodium Potassium was also conducted due to bloatedness and not able to poop.
The results of the cbc is normai on platelet count but low in hemoglobin which they said was due to the infection. Xray showed that the upper respiratory infection had progressed now to Pneumonia. The 2d echo results showed he had small aneurysm of the heart and it was confirmed a complete Kawasaki disease. We're so frustrated why the diagnosis is different every time and they told as that not all symptoms comes all at once They will be giving my son aspirin to treat the fever and swollenness and IVIG for Kawasaki disease treatment. The cause of the disease is unknown, all they know was it's part of the own immune system's response to viral or bacterial infection.

Complications includes pneumonia, continous high fever, conjunctivitis (swollen red eyes) and small aneurysm of the heart due to the Kawasaki disease. After the IVIG treatment, some of the complications are resolved but the aneurysm of the heart remains and needs continous medication. We would like to reach out for help for my son's continuous medication. May God bless your generous and grateful hearts. Thank you.