Joseph’s Equipment fund

Update posted by Nicola Whitworth On Jul 20, 2017

Huge thanks to my good friend Naomi who I lived with at Newcastle University. She is making the ambitious undertaking of running the Manchester marathon in April with the aim of raising £2000 towards Joseph's new chair.

Good luck with the training Naomi

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Update posted by Nicola Whitworth On Jul 20, 2017

Huge thanks to my good friend Naomi who I lived with at Newcastle University. She is making the ambitious undertaking of running the Manchester marathon in April with the aim of raising £2000 towards Joseph's new chair.

Good luck with the training Naomi

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Update posted by Nicola Whitworth On Apr 02, 2017




Following on from the fundraising we started for Joseph a couple of years ago, I wanted to update you all on what we have managed to get with him and to also make a plea for help with further fundraising.

As you can see in the picture, Joseph absolutely loves his bike and we have enjoyed many bike rides as a family but also with Joseph's friends.

He is also finally getting going with the eye gaze. Even though it arrived last year, he has not been able to use it as we have been waiting on some software and training. The software is now installed and he had the training a couple of weeks ago so he is now ready to start using it. He will start using it for a short while each day at school with the hope that by the time he gets to high school he will be confident and proficient at using it.

The final piece of equipment we have been fundraising for is the portable hoist which is becoming increasingly more important as he gets bigger. We now have nearly all the money for this and are now ready to start looking for the most suitable one for him.

Thanks to everyone who has helped either by donating or by fundraising in another way. I must make a special mention to Colin, Helen, Rachael, David, Karen, Michelle, Emma, Katie, Hannah, Joanne and Matt who have all done fundraising for him as well as Persimmon homes and the Association of Former Man Utd players.

Now comes a big plea to all our family and friends. In the last fortnight we have had meetings with both the High school and wheelchair services. It has become apparent that we need to look at getting Joseph a new chair in time for when he starts high school in Sept 2018. His current chair is now 6 years old and is obsolete, so finding any parts for repair work will be very, very difficult. Discussions have also suggested that the best way forward for him when he gets to high school is a sit to stand chair as the school feel it would be difficult to accommodate both his chair and stander, which he has to use on a daily basis for physiotherapy. A sit to stand chair is not available on the NHS and will be at least £15000. We have been advised that we need to start fundraising now if there is any chance he will have one in time for staring high school.

Joseph's current chair was charity funded by the Joseph Patrick trust. We were very fortunate at the time as they were the Tesco charity of the year and had a lot of money available for equipment for children with muscular dystrophy related conditions. Unfortunately, this kind of funding is just not available any more.

I appreciate that most of our friends have family have already been very generous and already donated towards his bike, eye gaze and hoist and we are not asking for further donations.

Jamie and I are running the Great North Run in Sept and hope to raise some sponsorship for his chair then, but we know it will be very unlikely to hit anywhere near the £15000 mark we need to raise.

What would be really helpful is if anyone is doing something that could be sponsored, they could consider doing it to raise money for Joseph's new chair. A run, sky dive, climb etc etc (or even organising a charity event).

Many thanks for reading and thanks to everyone for their ongoing support.


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Update posted by Nicola Whitworth On Mar 20, 2016

Thank you so much to Joanne Fortune who ran a half marathon last weekend to help raise funds towards a portable hoist for Joseph. Such a great achievement and thank you to everyone who sponsored her. She raised a whopping £540 in total for him by doing this.

It's my turn tomorrow with the Poynton 10k! Thanks to everyone's support Joseph collected his adapted bike today and can't wait to get out on it.

I pledged at the beginning that I would do 10k and at the time that seemed near to impossible. It's taken a while to get there but it seems apt that I will be running it the same weekend we collected his bike, which has been paid for by generous donations from friends, family and even some people we don't know. We are very grateful to you all and I am running this race not just for Joseph, but for all of you who have helped and supported with raising funds for equipment for him.

Feeling nervous now! X

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Update posted by Nicola Whitworth On Mar 19, 2016

Thank you so much to Joanne Fortune who ran a half marathon last weekend to help raise funds towards a portable hoist for Joseph. Such a great achievement and thank you to everyone who sponsored her. She raised a whopping £540 in total for him by doing this.

It's my turn tomorrow with the Poynton 10k! Thanks to everyone's support Joseph collected his adapted bike today and can't wait to get out on it.

I pledged at the beginning that I would do 10k and at the time that seemed near to impossible. It's taken a while to get there but it seems apt that I will be running it the same weekend we collected his bike, which has been paid for by generous donations from friends, family and even some people we don't know. We are very grateful to you all and I am running this race not just for Joseph, but for all of you who have helped and supported with raising funds for equipment for him.

Feeling nervous now! X

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Update posted by Nicola Whitworth On Feb 27, 2016

This is a well overdue update to report where we are up to with equipment, when our 10k is finally happening (eek!) and also 2 activities that friends of ours have got coming up to raise sponsorship towards Joseph's equipment fund.

Firstly, thanks to all of the kind donations Joseph has received, along with charity contributions from Persimmon Homes, the Manchester United Former Players Association and the Joseph Patrick Trust from the Muscular Dystrophy campaign, I am thrilled to report that we have raised all the funds for eye gaze technology and for the adapted bike! Thank you so much to all of you who have helped make this happen. Both pieces of equipment have been ordered and we believe the eye gaze should be with us in a week or two and the bike in about a month. As you might expect, Joseph is thrilled and can not wait to get using both pieces of equipment.

I pledged in July that we would do a 10k run, and although it has taken me a very long time, I have now committed to taking part in the Poynton 10k on the 20th March. In July, I hadn't run further than 100m since I was a teenager, so although it's been a long journey I am now finally ready! I feel the Poynton 10k is very apt as our friends in Poynton have been a significant part of this journey and I would love for some of them to come along with Joseph to cheer us on!

Now we have the bike and eye gaze on order, the other piece of equipment we would like to get for Joseph is a portable hoist. We are very fortunate to have 2 friends who have events coming up soon to help raise money towards this.

Joanne Fortune is putting me to shame by running the Liverpool half marathon on 13th March. Knowing how much I have struggled to get to 10k, I am so proud of her and we are really grateful that she has decided to do it for Joseph. Thank you very much to her friends and family who have sponsored her.

Also the 'Smith' family (Karen, Alex and Will) are planning to climb up Snowdon on May 21st, which is no meant feat for a 9 and 13 year old. Joseph will be joining them at the top, travelling up by the train.

Thank you again to everyone who has helped support Joseph's equipment fund, either by donating to it, by sharing it, or by organising a sponsored activity. We were very reluctant to set up his fund as we didn't feel comfortable with asking for money, but we have been overwhelmed how kind people have been. When we set it up in July, we never envisaged that he would have the eye gaze and bike less than a year on.

Thank you all from the bottom of our hearts.

We look forward to posting some photos of him enjoying his bike and eye gaze as soon as they are with us.

Love from NIcki, Jamie and Joseph xxx

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Update posted by Nicola Whitworth On Nov 29, 2015

We're nearly there! After having recently received donations from Jenny's run and Persimmon homes, we also had great news this week that the Joseph Patrick Trust (the Muscular Dystrophy campaign) are contributing towards the eye gaze so we are in the process of ordering this technology for Joseph. Hopefully it will be here by the end of the year, which Joseph is very, very excited about. This will help Joseph immeasurably at school and we are sure he will also use it to play computer games at home too!

As we have raised the majority of the funds towards the bike, we went to have a second look at a bike for him. He loved it and hopefully we will soon be able to order this too.

We haven't forgotten about the race! Joseph is very keen to take part in this but it is very difficult to find a 10k that he is able to participate in, so as a practice for our 10k which we aim to do early next year, in 2 weeks time we will all take part in the Man Utd Foundation 5k Santa Run!

As always, our ongoing thanks to those of you who have helped support Joseph either by donating to his fund or by sharing it with others. We would be grateful if you could continue to share it to help us raise sponsorship towards this race so we are able to order the bike for him very soon.

Xxx

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Update posted by Nicola Whitworth On Nov 20, 2015

What a great week! After hearing that Persimmon homes were kindly donating £1000 to Joseph's fund earlier last week, my very good friend, Jenny Kelly, came round last Friday with a whopping £940 that she had raised by doing a 10k race on Wed! She did the race in 58 mins 58 secs and I am so so proud of her! Thank you so much Jen- you are an amazing friend! I can't believe how close we are to getting the eye gaze and bike in such a short time. We wouldn't be in this position without the fantastic support we have received from our friends and family- we are so very lucky to have such great people in our lives! Thank you! Xxx

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Update posted by Nicola Whitworth On Nov 15, 2015

A big, big thank you to Persimmon homes http://m.persimmonhomes.com/ who selected Joseph's fund as one of their 'Community Champions' to receive 1000 towards his equipment! This is such great news and Joseph is thrilled that we are one step closer towards getting the eye gaze technology and bike for him. Thank you so much Alexa Burns for letting me know about this!

We have applied to another charity for funding towards the eye gaze and should hear on the next week or two whether they are able to help with this. We will then have a clear idea of exactly how much still needs to be raised. I am training hard and managing 5k comfortably now (which is a big achievement for me!). Hopefully it won't be long before I am ready to do the 10k to raise some more funds, with hopefully Joseph joining in with the race!

Thank you to all of you who have helped so far with the fundraising- it is amazing that we are so near to getting the eye gaze and bike for Joseph! Xxx


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Barry Ridings

Backed with £10.00 On Jul 09, 2017

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I have finally got together all the sponsorship from Livi Radical run xx Good luck with meeting your target you can do it xx

Helen Babbage

Backed with £50.00 On Jul 03, 2017

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Guest

Backed with £10.00 On Jun 11, 2017

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Anonymous

Backed On May 29, 2017 Amount Hidden

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Total raised by Lucy Pankhurst in sponsorship for completing the Radical Run at Tatton Park last week. Well done Lucy and thank you to all that sponsored her.

Guest

Backed with £150.00 On May 26, 2017

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Well done Lucy Bell for the Radical Run at Tatton Park on 20th May in support of such a great cause.

Jane Mcbrien

Backed with £20.00 On May 26, 2017

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Well done Lucy and team. Ian and Val

Ian Wagdin

Backed with £5.00 On May 22, 2017

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Well done Lucy Bell for a very wet Radical Run at Tatton yesterday!

Helen Dickson

Backed with £5.00 On May 21, 2017

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Well done to Olivia, Lucy and the others from Vernon today.

Vicki Elliott

Backed with £5.00 On May 20, 2017

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Richard Bell

Backed with £20.00 On May 20, 2017

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