£3,095.00raised of £30,000.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
Jolene Masson from Shetland was diagnosed with Multiple Sclerosis (MS) in 1984, at 7 years old, at a time when MS in children was unheard of.
She has experienced physical disability including loss of power in her legs, making walking extremely difficult or impossible at times. Also the loss of power in her arms making the simplest of tasks challenging. With years of nerve damage she suffers from what she can only describe as the feeling of "pins and needles" in both her feet, which is constant and although on medication to help dampen the feeling she is still aware of it.
Jolene is planning to go to Mexico to undergo Hematopoietic Stem Cell Transplantation (HSCT) to help halt the progression of her MS, in December 2016.
The treatment will involve chemotherapy to completely destroy her immune system before rebuilding it with her own, previously stored, stem cells. The treatment isn't without risk but it's a risk worth taking to hopefully end the 33 years of her suffering from the effects and uncertainty of this progressive condition.
The total budgeted cost will be around £70,000. The cost of the treatment alone is £40,000 with travel to Mexico and accommodation an additional cost. (Jolene will be in Mexico for a total of 5 weeks to undergo the treatment). Aftercare involves 5 Rutuximab infusions and will cost £5,000 plus travel and accommodation costs from the very north of Scotland to the private facility in England to receive this care.
Any donation received is greatly appreciated.
- Michelle Johnson
- Campaign Owner
Treatment has startedUpdate posted by Michelle Johnson at 11:38 pm
Last week Jolene travelled to Mexico to begin her treatment journey. It started on Monday with an appointment at the clinic, followed by meetings with various professionals: neurologist, cardiologist etc. Also an MRI scan and blood tests.On Friday chemotherapy started and was repeated again on Saturday.On Sunday Jolene received the. . . . .
3 weeks until Mexico!Update posted by Michelle Johnson at 12:13 am
A huge thanks to everyone who has donated so far, we have now reached over £2,000 on this page alone, which is fantastic! Friends and family (and Jolene!) have been busy with other fundraising events too: a variety concert in the 'big kirk', Sunday teas, sale tables, raffle, quiz sheets