Joe Alampi Bone Marrow Transplant

Update posted by oscar5661 alampi On May 29, 2015

On May 1st Joe received a bag of life from his sister Mary Jo. it was a most undramatic moment during a very dramatic time. A few days later he ended up in the hospital with fevers but this was not unexpected. A few days later he was back 'home' with me at the place we are renting across from the hospital. Living so close had great benefit as I had to wheet him over at 4 in the morning!

Each day we go over for his blood tests and, when necessary, he gets infusions of blood or platelets. Some days are long with us being there from 10 AM until 7 PM. Lately we've been getting back before 2. He had a scare last week when his potassium was too high and he was admitted to watch his heart. But for now he is feeling ok.

He is on many drugs and each day we examine the mix and see if there is any need to make changes. He has the beginnings of an immune system but not enough to go out. A very heavy mask is necessary when we are not in here or on the ward.

We are cautiously optimistic and continue to pray. We've not nearly collected what we need so any help you can arrange would be truly appreciated.

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Update posted by oscar5661 alampi On May 29, 2015

On May 1st Joe received a bag of life from his sister Mary Jo. it was a most undramatic moment during a very dramatic time. A few days later he ended up in the hospital with fevers but this was not unexpected. A few days later he was back 'home' with me at the place we are renting across from the hospital. Living so close had great benefit as I had to wheet him over at 4 in the morning!

Each day we go over for his blood tests and, when necessary, he gets infusions of blood or platelets. Some days are long with us being there from 10 AM until 7 PM. Lately we've been getting back before 2. He had a scare last week when his potassium was too high and he was admitted to watch his heart. But for now he is feeling ok.

He is on many drugs and each day we examine the mix and see if there is any need to make changes. He has the beginnings of an immune system but not enough to go out. A very heavy mask is necessary when we are not in here or on the ward.

We are cautiously optimistic and continue to pray. We've not nearly collected what we need so any help you can arrange would be truly appreciated.

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I love and miss you. I pray for you everyday. Please stay strong. Love you. Your baby sister Mary Jo

Mary Jo Scates

Update posted by May 29

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Update posted by oscar5661 alampi On Mar 29, 2015

On Tuesday, March 31st we will be heading to Johns Hopkins for 3 days of tests and procedures to determine if Joe's body is healthy enough for the chemo, radiation and finally his stem cell transplant. His donor, sister MaryJo, will be traveling down with sister Maria the day before from Rochester, NY. We will see each other on Tuesday night and then again just before MaryJo's life giving cells are given to her big brother on April 22nd. It is such an overwhelming feeling to think she will be able to keep him alive and give me my husband for hopefully many years to come. We ask again for your support and thank you to all who have already helped us.

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Update posted by oscar5661 alampi On Feb 21, 2015

Another round of chemo was necessary because the scan showed all of the cancer was not gone. Joe received the treatments in the first week of February. The chemo after affects have landed him in the hospital again. Once he sparked a fever we knew that it was inevitable. On Monday, February 16th we drove down to Wichester and they admitted him. A snow storm was jsut beginning and I just about made it home that evening. His fever spiked each night and was lower during the day. Tests have been inconclusive as to the source of infection; bacterial, viral or fungal. With the distance and my work schedule I was not able to get to see him until yesterday.

Today Joe woke up with no fever. He had a full breakfast WITH coffee and now is napping. Let's see what the next 24-48 hours brings.

A donor has been selected and we are praying that our next step is Baltimore and transplant. Joe's health is in the hands of the physicians, his own body and most of all our Lord.

You can help  us meet our financial goal. We know that either way the money will come. It will be given, borrowed, earned or in some way made available. The thing over which I have absolutely no control is Joe and his condition. It is this that our Lord has told me that I need to give over entirely to faith.

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Update posted by oscar5661 alampi On Jan 29, 2015

How wonderful to see Joe feeling like himself, enjoying a first beer in a long time and being home. We made it up to Baltimore to meet with the transplant team and to tour the place that will be our home for a few months. We then received some unwelcome news that Joe will need to undergo another round of chemotherapy. He needs to be cancer free before he can be allowed to get a transplant. This last round of therapy really took a chunk out of him and with getting the flu from me it took him a long time to bounce back. He has the determination but his body is tagging along. We pray that this next course goes down easy. For now I am trying to plan fun things and give him good things to eat. Next week he starts his infusions and then we have to wait and pray that he comes back to normal and the biopsys come back clean. We will then be on the road to Baltimore and a new birthday for my Joe.

 

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Update posted by oscar5661 alampi On Dec 29, 2014

Joe with his 'Toni' blanketJoe's first chemo was administered the week of December 8-12. This week he began feeling the affects. His white count is just at about zero - which means he has no resistance to infection. His platelets, the blood element that allows us to clot and not bleed out, were low and he was infused with a nice fresh bag. Thank you all of you blood donors out there! But the fun was just beginning. On Christmas Eve I came down with the flu and on Saturday he came down with a fever and was admitted to the hospital. It was a rough night but he is now on multiple infused antibiotics and getting good care. I finally had two fever free days and was able to visit my sweetie today. He is being well cared for. I gave him his Christmas present which you can see in this picture.

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Wishing you a full and quick recovery!

Dorie Jennings

Backed with $50.00 On May 29, 2015

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Hang in there!

Jim Pulcini

Backed with $20.00 On Feb 02, 2015

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Hang in there Joe!

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