I have been diagnosed with End Stage Renal Disease last March 2017. It has never occurred to me that I will lose both my kidneys so suddenly just like that.
And now, I have to do dialysis three times a week, each session costing about USD$40. On top of this, I need 2 mircera injections per month to treat my anemia, that adding another USD$60 per injection. Without these dialysis treatments, I run the risk of having water in my lungs as well as an increase in heart attack occurrence.
I am no longer able to work and help to provide for my family due to the disease. Many employers have denied my job interview as I need to take medical leave at least 3 times a week due to my dialysis schedule.
To make matter worse, I am more prone to infection. Due to this, I had abscess on the lower part of my head, right above my neck. I was hospitalised for more than 2 weeks in May 2018 and had to do daily dressing which cost about USD$2.50 per dressing. It tool the wounds at least 4 months to heal. Then in November 2018, a new abscess appeared on the top left of my head. I was again hospitalised for the surgery to completely remove the abscess or else i risk having it growing on my head again. The surgery and hospitalisation fees cost me USD$120. And of course, I will have to continue doing daily dressing on the wound on my head.
For the dressing, I will need to buy Dermacyn Wound Care Solution (which cost about USD$9) to clean the wound and cavida gel (which cost USD$20) to treat the wound. One Dermacyn bottle can last for at least 1 week plus only. And I have to keep buying it until my would has completely healed. Thankfully, The wound has healed up but there is a bald spot on my head now.
On September 2018, I was scheduled to fix a fistula in my left arm for dialysis purposes, costing approximately USD$1,000, not including the follow-ups with the doctor once the surgery is completed. Once it was done, I managed to utilise the fistula for one month before my veins ot clogged up and I had to either put a balloon in my veins to fix it or re-do the fistula again. Putting the balloon is so much more expensive than fixing a new one, so I opt to get another one done. This time I had to be hospitalised. The hospitalisation bill plus surgery cost almost USD$1,000.
Along with all these, my husband has been diagnosed with cataract in both eyes. Being unable to see very well, he too can no longer work in his current condition, which hopefully will be all right in due time as he is waiting to go for an operation to remove his cataracts. This in itself would cost about USD$1,000 for the operation. Not including medical treatment and doctor’s follow-up.
With everything that's happening, our savings are already depleting and without any means of income, I am very much worried about our future.
Should we run out of money, how am I able to pay for my dialysis and my husband's cataract operation? More often than not, my husband and I will argue with each other over money. Not only that, we often argue with our family members as well, especially when we asked for financial help or when they requested us to return the money we loaned.
A light of hope shone onto me when the doctors told me that I can go for a kidney transplant surgery but the operation as well as medical cost is rather expensive. Not only that, I will have to wait in line for my turn before I will get any donor that is suitable for me. Therefore, while waiting for my turn to come, my friend told me about this GoGetFunding (GoFundMe is only available in the USA side) page and asked me to give it a try to raise some funds for the operations as well as my cost of living and necessities.
I have seen a fellow patient denied his chance for a new kidney transplant due to insufficient funds to continue with the surgery. I want to save up some money now so that I will not be on the same boat and reject my opportunity to start a new life with a new kidney.
Any amount of donation is very very much appreciated. Please help me to get a new kidney so that I can start a new life and help my husband to fix his eyes as well.
I don't really know how to express my situation in words but I do hope that after reading my story, you would find it in your heart to understand and reach out to help even if it's just a little. People have always told me that there will always be hope as long as I don't give up.
Last but not least, thank you for spending some time to read this and I thank you from the bottom of my heart should you decided to donate for my "new kidney funds".
May God bless you all!