Hello my name is Barbara Duck also known for years as the Medical Quack with my healthcare blog of 8 years or so. I discuss "the business" of healthcare. All of a sudden lawmakers are wanting to regulate the tech industry, well nothing will happen until all the players are identified with a license. We need to know who they are. We know the big guys, but they have subsidiaries and there's smaller companies selling your personal data you have never heard of, until there's a breach. Exactis is one of them and read more hear to see how much data this little company had on millions of Americans.
The video is from a presentation I gave to a large group of doctors a couple years ago, and let me tell you, jaws were dropping, because nobody gets to the point of the cause in main stream media. This campaign is done with a healthcare theme, but it applies to all data that is secretly mined and sold about you. I call it Excess Scoring for profit as everything we do today is scored, it's sick virus that has infected the US as the best things in life today really are not scored.
This is what I call a One Trick Algo World. Actually I've beenw writing about companies and their Quants and Software Engineers cheating with code for about 10 years now and I think it could finally be sinking in. Keep your digital profile small and use cash whenever you can to keep the data that's collected by greedy corporations down to as small as you can get it.
Do you get prescriptions filled? Read the next link and see how you are given a "secret" medication adherence prediction score. That's right, the pharmacy benefit managers scour the web and the other resources of data they buy, like all your credit card data to see what you behavior is. The metrics are very questionable and you get dinged a point if you are a male seeing a female MD. That metric has nothing to do with taking your medications.
We need "some" privacy and we should be licensing all the corporations who buy and sell our personal data, who are they, what are they selling, as right now there's no listing and we license occupations that pose much less risk, like hairdressers for one example. We should be able to at least see who the corporate data sellers are and require them to have a license, and this is step one for any regulation to take place at all, as you can't regulate if you don't know who the players are.
The World Privacy Forum did a great report that was cited many times, even by the White House, who did nothing other than cite the report though. Give it a look and see what they have to say about "scoring". Every must be scored today and it's a bad deal with bad algorithms as there's so much flawed data and without knowing where to go, we are stuck with whatever flawed data gets sold about us.
Anything you happen to contribute here will be put to good use, believe me and I might suggest you follow me on Twitter as there's a lot of privacy links posted regularly on this topic.
The data selling business for corporations today is a $180 Billion dollar a year business and it keeps growing so keep those apps to a minimum and use cash when you can as your credit card records and your associated behavior are for sale everywhere.
Give me a hand would you to get this moving to make it law? I am so tired of all the politicians and their ridiculous perceptions about how to get this done. Those folks live in virtual worlds and not the real world as with software you can do something about anything and distort reality to where there's almost no point of return. I used to write software, I know this.
If you want to visit some of writing of the past, which sadly are here in big force, take a look at the page called "The Attack of the Killer Algorithms"...lots of videos and links there from smart folks that even probably know more than me.
Before that a few years ago I had about 60 posts that I attributed to Killer Algorithms up to around 60 or so with every day examples, again these are the archives but sadly they all came true and worse for corporate greed. We lose!
Again lawmakers are pretty dumb and most don't even have the word algorithm in their vocabulary and have not a clue on how to start any kind of regulation for this. Identifying and licensing all of them is step one, otherwise you don't know who the targets are, simple as that. They all get sucked into believing there's new magic pixie dust code that can fix this and nothing is farther from the truth, so we need to get step one done or it's more of the same talk I have heard on this topic for 10 years with nothing done.
Thanks so much!