I want to thank you in advance for reading my story. I never thought I would end up in this kind of situation but here I am. It’s been a really difficult year to say the least.
Ever since last November I’ve been experiencing a very horrible and scary health issue that involves my face. I have been losing healthy fat, tissue, muscle and bone in my face and it continues to get worse. my entire face and head have changed dramatically, my forehead and scalp feels bony, my chin has atrophied, my jaw muscles have wasted away, I even suspect I have total bone loss all over my face as well. My whole mouth palette have shrunk as well, I have not lost any weight nor have I been on any diets etc, yet my face has slimmed down dramatically but not in a healthy or positive way at all.
My condition has accelerated and I’m under no medical care because of medical insurance not being reliable and basically no support at home as well. I have no diagnosis, no treatment and no scans or a skin biopsy done. My eyes have recently began to sink in and I’m very worried, very anxious and I need all the help I can get quite urgently, I may end up losing my vision if this disease is not stopped. I feel terribly embarassed to ask for help but now more than ever I need help to be seen by a specialist and to get tests done so that I can get a diagnosis for my condition and possibly treatment to help stop this disease or put it into remission. It is quite expensive to see a specialist and have tests done for my condition without medical insurance in my country.
I could have lupus, parry Romberg syndrome (which is a very rare disease) or something else, it’s all a guessing game until I get tested for this. I feel so alone and isolated with this condition because I’m really afraid of what’s going to happen if I don’t get the help I need. Every day that passes by I grow more and more anxious because I see more and more damage done on my face. I feel as if I may have some autoimmune disease which is attacking my face quite rapidly. It has made me very depressed and scared.
I’ve attached photos of me before this illness and after, you can see that my face has literally become smaller, I’ve lost a lot of facial tissue and cheeks, my eyes have also sunken in, my chin area is thinner and there’s a lot of tissue loss around my mouth area the worst part is that whatever is happening to me is progressing.
I want to thank you in advance for reading my story and those that are willing to help me. Please also keep me in your prayers during this really difficult time.
Update : my eyes are affected and I’m losing fat within the eyes. I’m unable to see any doctor because of lack of funds. I desperately need medical help soon.