Hope for Hashem

  • US$27,695
    raised of $62,000.00 goal goal
44% Funded
47 Donors
Raised offline: $274.00
Total: $27,969.00

No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities

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My name is Mohammed Busttami and I am humbly asking for your help. My son, Hashem, was born with a rare neurodevelopmental condition called CDKL5 deficiency disorder. Since he was 2 months old, Hashem has had almost daily seizures. Aside from early onset epilepsy (seizures), children with CDKL5 deficiency disorder have little to no speech, low muscle tone, developmental delays in gross motor function (i.e., walking, sitting, standing), and impaired fine motor skills (i.e., grasping or writing). My wife, Jasmine, and I have been doing the best we can to help our son as much as possible. We have taken Hashem for extensive testing and gone to the best doctors we can afford. We have moved to a new apartment to provide easier accessibility.

Hashem is currently on multiple medications to help reduce the frequency of his seizures. He is also in a rehabilitation program, which is a series of therapies recommended at least 3 times per week. Initially, the medication and rehabilitation services were helpful in managing and reducing his seizures; however after trying 12 different medications with limited success, our medical team has recommended Vagus Nerve Stimulation (VNS) Therapy. This therapy requires a very expensive surgical procedure ($55,000 USD surgery/$7,000 USD hospital stay) to implant a medical device that delivers regular pulses of electrical energy via the vagus nerve, which connects to the brain. This treatment is designed for people with drug-resistant epilepsy (4 years of age and older) with partial onset seizures. It can safely lead to fewer and shorter seizures and better recovery after seizures. This means Hashem could see a 90-99% reduction in his daily seizures, which would be tremendously beneficial for his quality of life.

Since Hashem will be turning 4 years old in June, he will be eligible for VNS Therapy. It is our greatest prayer to be able to provide him with this life-changing surgery. Jasmine and I are humbly asking for your support so we can give our son the best life possible. We are forever grateful for your generosity in helping our sweet boy!

Fundraising Team

  • Mohammed Busttami
  • Kamal Busttami
  •  
  • Fund Captain

Donors

  • Anonymous
  • Donated on Jul 15, 2023
Amount Hidden
  • Mercedes Lendrino
  • Donated on Jul 09, 2023
$50.00
  • Nabil Qaddumi
  • Donated on Jun 26, 2023
Amount Hidden

No updates for this campaign just yet

Donors & Comments

47 donors
  • Anonymous
  • Donated on Jul 15, 2023
Amount Hidden
  • Mercedes Lendrino
  • Donated on Jul 09, 2023
$50.00
  • Nabil Qaddumi
  • Donated on Jun 26, 2023
Amount Hidden
  • Tayseer Barakat
  • Donated on Jun 21, 2023
$1500.00
  • Karel Reybrouck
  • Donated on May 22, 2023
  • Sending lots of love and courage to Hashem and his parents.

$150.00
  • Deena Schwen Blackett
  • Donated on May 18, 2023
Amount Hidden
  • Guest
  • Donated on May 16, 2023
Amount Hidden
  • Guest
  • Donated on May 14, 2023
$10.00
  • Maha Alzaben
  • Donated on May 01, 2023
$20.00
  • Anonymous
  • Donated on Apr 20, 2023
Amount Hidden
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Followers

8 followers
Nelson Charles
marketing agency
sam ali
Fahmi Alghussein
maysa idilby
Ahmad Shehada
Amina Mansour
Barbara accardi
US$27,695
raised of $62,000.00 goal
44% Funded
47 Donors
Raised offline: $274.00
Total: $27,969.00

No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities