HI to healing of Myasthenia Gravis

Update posted by PUI YING IRENE CHIA On Apr 06, 2020

With the Movement Restriction Order (MRO) in place, we are only allowed ONE person in a car unless it's an emergency. Last Saturday, a real need arise - I need to drive across the city to collect my daughter's breastmilk donation. We made the decision for me to go because with my husband being a foreigner, things might get lost in translation when he needed to stop at police roadblocks. I was quite excited about it and planned the adventure early in the morning to minimize the potential effect of ptosis (droopy eyelids).

Yes, I successfully drove that morning all by myself! Even though I spent just under an hour for my whole trip, I am so grateful that I was able to drive. Prior preparation was needed like sunglasses and a hat to help reduce the brightness of the sun. I celebrated God's goodness on that day for making it possible for me to be on a Mama's mission to provide food for my child.

I have been experiencing stabilization and improvement of my symptoms. In fact, since the MRO, we have been managing without help in the house. I have been managing things on bite size as our home is still on its way to be set up that it supports my daily life with the demand of disease. My main focus for now is to take care of my daughter, cook simplified one pot meals and to clean the place as I can.

We look forward to the next doctor's appointment and I will post more updates after that.

Blessings,
Irene


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Update posted by PUI YING IRENE CHIA On Mar 13, 2020

Hello everyone,

I have just seen my neurologist today. The blood test results has seen some improvement in terms of hemoglobin level, I am now back to normal (was on the lower end during hospitalization); other parameters like my liver and kidney function are looking good. Upon admission to the hospital, my blood sample was sent for Acetycholine Receptor Antibody test, the result came back positive and at very high level. This confirms my condition as being serology positive MG.

Today has been a very bright day. Heat and brightness are factors that tires me easily. We are currently managing lower activity during the day and I will have naps whenever I needed it. Kota Kinabalu, Sabah is a very beautiful seaside city; I used to enjoy the sun a lot and I am looking forward to enjoy it it again once my condition is well controlled.

Next appointment will be in a month's time and routine blood test as well as further test for other autoimmune condition will be done in the next appointment as I am also found to be positive on Antinuclear Antibody in my blood. We pray that all is well and my body is healing.

Thank you for your generosity in supporting us. Your support has definitely made paying the bill today less stressful for us.

Blessings,
Irene


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Good luck on your fund raising campaign and wishing you a full recovery.

Connie Wu

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Hi Irene, I am sorry to hear of your illness. I can't image what your going through, but I sense you are strong and courageous and will overcome this challenge and continue to live a wonderful life with your family. My prayers are with you, Hans and your little baby. I knew Hans many years ago while we both played in a church band. He is good guy, I wish you and him all the best.

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