Help Save Ayisha from F.I.R.E.S.
Fundraising campaign by
Glenn Apacible
-
₱43,415Donated So Far
My niece, Ayisha, is confined in the ICU of The Medical City since September 20, 2017. At 6 years old (turning 7 this November 4), she has been diagnosed with a rare type of epilepsy called Febrile Infection-Related Epilepsy Syndrome (FIRES), a disease that affects one for every one million children. Up to now, her doctors are still searching for the right combination of medicines to control her seizures. It seems that every time we think that the seizures have been controlled and she's already on her way out of the ICU, EEG test will reveal that seizures have recurred. Hence, she needed to stay in the ICU longer.
Her neurologist has been honest to us from the start that it's going to take some time before her case can be controlled. And it's already taking a financial toll on the family because her medical expenses average 100,000 Philippine Pesos (around US$ 2,000) per day. Sadly, we don't know how long she needs to stay in the ICU of The Medical City. We already considered transferring her to the Philippine Children's Medical Center, a government hospital, but Ayisha's condition is still critical and transferring her might just expose her to higher risk of infection, so doctors do not recommend this option for now.
At this point, prayers and financial support will be greatly appreciated. No help is too small to help save our dear Ayisha from this mysterious disease.
Thank you and God bless!
Donors
- Olivia Mascolo
- Donated on Oct 29, 2017
Praying for complete healing. Remember that Jesus loves you and is with you always. xoxo
- Anonymous
- Donated on Oct 26, 2017
We are all here to help. Praying for ayisha’s speedy recovery
November 17, 2017: Ayisha is Finally Discharged from the Hospital
Update posted by Glenn Apacible at 11:23 amAfter almost 2 months in the hospital, Ayisha is finally home. Discharged from PCMC, we went straight to my brother's home. Ayisha did not immediately recognize their house but when Oreo, her dog, came out, we saw how her memories are slowly getting back. She insisted on trying to walk. . . . .
November 1, 2017: Ayisha's First Artwork Since F.I.R.E.S.
Update posted by Glenn Apacible at 11:41 pmHi friends, we gladly share with you Ayisha's first artwork after almost 2 months in the hospital battling F.I.R.E.S. Home and love of family describe her first creation, which really touched us; we're happy to know that despite of her disease and what she went through, she can still remember. . . . .
October 29, 2017: Seizure-free in her 24-hr EEG Test
Update posted by Glenn Apacible at 11:25 pmInstead of having a 12-hr EEG test as originally planned, Ayisha had a 24-hr EEG test. And we're happy to announce that Ayisha was seizure-free during the said test. :) We claim that she is already healed by our merciful God and Savior. We are now on the road ro. . . . .
October 24, 2017: Ayisha is on her way to recovery
Update posted by Glenn Apacible at 06:33 amWe thank the Lord for bringing Ayisha back to us. Today, we've seen her stand on her toes with here dad's help. We've also seen her communicating with her PT for her rehab, but what touched us the most is we've finally heard her talk. Yes, even if she had. . . . .
October 21, 2017: Ayisha's 12-hr EEG
Update posted by Glenn Apacible at 06:20 amWe are continuing our fight for Ayisha as she is already fighting FIRES with us. Still with seizures in her EEG, she tries to fight off her seizures. Hoping that her PCMC doctors will soon be able to figure out the right combination of meds to stop the seizures. Please
October 17,2017: Ayisha is now out of PCMC ICU
Update posted by Glenn Apacible at 02:49 amAyisha is finally out of PCMC ICU at around 2pm today and is transferred to a private room. Her vitals are all ok, seizure-free from 11am of October 16 to time of this writing (10pm October 17). Sharing her vibrant smile to all. Please continue praying with us as we. . . . .
October 14, 2017: Ayisha is transferred to Philippine Children's Medical Center (PCMC)
Update posted by Glenn Apacible at 09:22 pmWe were given clearance by The Medical City (TMC) doctors that Ayisha is already stable enough to be transported to PCMC. Meds she's taking now are helping but still does not take away the seizures completely. Her on and off fever is making it even worse for our liltle angel.
Donors & Comments
- Anonymous
- Donated on Nov 09, 2017
From Cool M via Pow Chavez, kindly accept our help.
- Olivia Mascolo
- Donated on Oct 29, 2017
Praying for complete healing. Remember that Jesus loves you and is with you always. xoxo
- Anonymous
- Donated on Oct 26, 2017
We are all here to help. Praying for ayisha’s speedy recovery
- Guest
- Donated on Oct 26, 2017
Praying for you, Ayisha.
- Anonymous
- Donated on Oct 21, 2017
May God be with you always, Ayisha. Your friends from AA are excited to see you back to school.
- Anonymous
- Donated on Oct 18, 2017
I don't know her but I'll keep on praying for her.God is good !
- Anonymous
- Donated on Oct 18, 2017
- Anonymous
- Donated on Oct 18, 2017
heartbreaking for a mother like me but God will get you through this. your efforts, prayers and love will not go unnoticed by God. please trust Him and raise it all up to Him. things might get tougher but He will get you through this dark stage. Trust Him.
- Anonymous
- Donated on Oct 15, 2017
- Anonymous
- Donated on Oct 15, 2017
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From Cool M via Pow Chavez, kindly accept our help.