Mustafa was born a beautiful baby boy. He was cheerful, loved and smiled a lot with everyone; that’s what stood out most about him. At 8 months we started noticing unusual behavior like difficulty in breathing, being unable to move his arm and legs.
Shortly, After several thorough tests, he was diagnosed with Spinal Muscular Atrophy type 1.
How do parents feel when they are told that their beautiful, expressive, cheerful baby boy is suffering from a devastating disease for which there is no cure? That he will gradually yet swiftly lose him ability to move, babble and breathe? That he will lose his ability to eat without choking, and that he will probably die before reaching his second birthday?
We’ve tried to remain strong and hopeful for him regardless of how difficult it is dealing with it as his family.
Our baby boy did nothing except get a bad roll of the genetic dice and he deserves a shot at life and I know he’s destined for far much greater things.
We are clinging on to the hope and possibility of him getting treatment with the help of family, friends, colleagues and anyone out there that would love to help to getting him one step closer to the life he deserves.