We are Alice Chan and Cyrix Law, the parents of Wilbert Law. Wilbert is a 4 years old happy autistic boy who was diagnosed with severe autism spectrum disorder and global delay back on 30 Sept 2016. He never cries without a cause and will not be unhappy even if you take away his toys or stop him from watching his favourite YouTube videos. He is currently non-verbal without any meaningful words and cannot show his needs with any means. Whenever he feels hungry or irritated due to eczema, he just cries or loses temper. We wish to help him express himself by using a new treatment called NOIT which is not affordable for us.
We tried on every possible evidence-based intervention and support to help him overcome his difficulties paying attention to the environment but in vain. Occupational Therapies on Sense and Integration, speech therapy, special child training, TEACCH and Analytical Behavioural Analysis(ABA).
Since the start of this year, Wilbert’s behaviour and overall functionality took a major turn. He became incredibly invasive during bedtime. He starts to hit or kick us at night when he feels excited. Both of us and his little brother got hurt because of his punch or kicks. It really helps if he can express himself with words other than body language.
We have tried to get assistance from the social welfare department in Hong Kong. But none of the therapies seemed to work on his speech and behavior. He did show improvements in self-care but most required assistance.
In Hong Kong, since governments provide very limited resources to children with special needs, access to professional therapies is extremely costly. 5-day ABA monthly training costs around US$8,000 to US$9,000, which is something we cannot afford. Instead, my wife has left her favourite job as a midwife / registered nurse to train Wilbert and since then we live on my income and our limited savings.
As some of you may not know, autism is considered a preexisting condition when it comes to insurance. Meaning that insurance won't cover medical expenses when it comes to his condition. Families with children with ASD spend on average US$30,000-US$70,000 a year on medical, therapies, and diets for their children. We have all of this and still we are exhausted and demoralized by a government that is failing to step up and support autistic children and adults along with their families and caregivers.
We have now spent most of our savings on his therapies. Our money is running out soon. Wilbert is now less than 2 years from his golden treatment period before 6 years old. It’s of urgent need for intervention. The NOIT therapy in Hong Kong costs twice to three times as much than in the US, but we earn one-third the amount as compared to those in the US. We wish to raise money for the continuous NOIT therapy for Wilbert to start learning to speak. The starting cost is around US$1,500 and a monthly cost of around US$500. We hope to raise the target amount for Wilbert to receive NOIT for 18 months starting from September.
Every Single Buck Helps!
Share this fundraiser to Facebook to let others know more about autism and their family.
God has its plan and we do believe that God will use Wilbert to bless the minorities in Hong Kong. This fundraiser will be a start to reveal God's magnificence.
Do visit our Facebook Page to know more about Wilbert and his fight with autism limitations.
[video]Coverage by TVB, Hong Kong's major television provider.
[news feed] Coverage by Ohpama, a renowned news site for parenthood.
[news] coverage by TOPick, a subsidiary of the HK newspaper HK Economic Times.
Alice Chan with Cyrix Law
Parents of Wilbert Law