Many are called to be mothers but only few are chosen to be the mother of warriors. Please take time to read to help you picture out the life of two warriors I have battling in their individual battle fields. I'm chosen to be the mother of two warriors: thalassemia and sturge weber syndrome. This two rare diagnosis made me the mother of my two children. My daughter Vella, she's 1 year and 4 months diagnosed with sturge weber syndrome, my son Mark Erickson, he's 6 and diagnosed with alpha thalassemia. Having their rare conditions, our lives changed so much. We always live our lives always in the hospital, the financial situation gets even worse because of the increasing amount of debts to augment their medical needs considering that we live in a province where medical attention isn't quiet good for their conditions. We need to travel for almost two hours to another city by ferry for a bigger hospital.
I'm a teacher by profession and the sole provider in the family and my husband stays home to take care of the kids. Life wasn't easily. Our shelter isn't in good condition, it's worn out because it's only made of wood. So many times we plan to repair the house but financially unable because we always prioritize the daily needs of the family specially Vella's medications.
We only have 1 small ceiling fan and 1 desk fan to help Vella get ventilated, but because her birthmark is dilated, this two can't really make her feel comfortable and that causes her seizures.
Vella is admitted again due to uncontrolled multiple seizures, pneumonia and rashes that are suspected to be measles. She's with oxygen because of the continuous seizures and she's experiencing difficulty in breathing. Her left face where her birthmark was located is dilated/swelling.Her doctors are working on her condition but this also means that higher hospital expenses.
We would like to knock your hearts to help us raise funds for Vella's medications, treatments and she needs to have the laser treatment again. However, we need to prioritize her condition, how to control her seizures. To keep her well ventilated is one of those and also to have a standby oxygen tank at home for her to use everytime she have seizures.
She's been referred to see another neurologist in Manila for further assessment and treatments.
It takes a village to raise a warrior! Your help will surely give my daughter Vella a chance to live life the way we do.