My cousins little boy Michael has FPIES. This is not the "typical FPIES". He has reacted to 47 foods and 9 beverages. He can only survive on Neocate Junior Unflavored withOUT prebiotics. He lives life very different then most 3 year olds. He does not get to have a ice cream, candy, or even enjoy a holiday meal. He cannot have anything but the Neocate Junior Unflavored withOUT prebiotics.
With that said...the company that makes this product changed their lable recently. Michael is having bad reactions to the new lable of this product. He cannot have it. My cousin is trying to raise money to purchase at least 200 cans for her son to be able to have food for another 200 days, hoping the company will "fix" this huge problem. This is not a cheap product. It costs about $50 a can, and Michael has one can a day. We are desprately searching the internet and reaching out to raise money to purchase the old lable. If you can assist with $1 or $100 that would help save my cousins life. He stuggles every day, but now, this company's "mistake" is killing her son. Please, this is a cry for help to save this little boy. Michael has gone through so very much in his short life. Help make the next 200 days pain free.