Help Save Baby Lilah Emilia

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I am Kalid Al Raee a father of two beautiful angels, my first born is Layla Elleina, was diagnosed with SMA type 1 and unfortunately passed away last October 8, 2019 at 8 months old, then my second daughter is Lilah Emilia born last December 7, 2020, 6 months old and unfortunately has been diagnosed with the same disease as with my first born.

(Spinal Muscular Atrophy) Spinal muscular atrophy (SMA) is a genetic (inherited) neuromuscular disease that causes muscles to become weak and waste away. People with SMA lose a specific type of nerve cell in the spinal cord (called motor neurons) that control muscle movement. Without these motor neurons, muscles don’t receive nerve signals that make muscles move. The word atrophy is a medical term that means smaller. With SMA, certain muscles become smaller and weaker due to lack of use.

Type 1 (severe): About 60% of people with SMA have type 1 , also called Werdnig-Hoffman disease. Symptoms appear at birth or within an infant’s first six months of life. Infants with type 1 SMA have difficulty swallowing and sucking. They don’t meet typical milestones like holding up their heads or sitting. As muscles continue to weaken, children become more prone to respiratory infections and collapsed lungs (pneumothorax). Most children with type 1 SMA die before their second birthday.

I am knocking at make a wish foundation international community to please include my daughter “Lilah” to your prayers that she may receive an immediate treatment. There are few treatments to this illness such as; Sprinraza, Zolgensma, and Evrysdi which unfortunately cost millions of dollars, also not available in our country Philippines.

But as a father I will do everything to make it possible for my daughter to live, I already lost one and I don’t wanna lose another one. I trust and believe that GOD will do his Miracle.

My heart is broken into pieces, but I will keep my feet strong! For my daughter..

I am hoping that maybe you could help me with this fundraising and help “Lilah” to survive.

#cureforlilah #cureforSMA #cureSMA #GODisGOOD #MIRACLEFORLILAH #makeawishfoundation

Other options to help:

200045230898

Miriam Mae N. Manalo

Eastwest


Gcash 09454731594

Miriam M.

Organizer

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₱500.00

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₱500.00
raised of ₱1,000,000.00 goal
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