US$535.00raised of $33,000.00 goal goal
Adelaide "Baby Addy" Callanta was diagnosed with a rare disorder which happens to 1 out of 15,000 to 18,000 babies called Biliary Atresia, a life threatening liver related disease.
"When a baby has biliary atresia, bile flow from the liver to the gallbladder is blocked. This causes the bile to be trapped inside the liver, quickly causing damage and scarring of the liver cells (cirrhosis), and eventually liver failure."
In the case of Addy, her common hepatic duct and gallbladder were not fully developed. To establish the bile blow from her liver, a major operation that took more than 6 hours which is called a Laparoscopic Kasai procedure was done when she was 65 days old after which she has regular follow-ups by both the Pediatric Surgery team, Pediatric Hepatology and Gastroenterology. They took some parts of her intestine and made it as a bile duct connected to the liver and to her intestines. Her gallbladder was removed.
A year after Kasai, Addy started to have some complications that damaged her liver. She has Hepatosplenomegaly, gained 3 attacks of ascending cholangitis and varices. She requires a regular follow-up with the Doctors with regular investigations prior and after Liver Transplantation but we can hardly afford the expenses due to financial issues.
We humbly ask your financial support to cope up the needs for Addy's follow-ups, investigations, medication and most especially for her Liver Transplant.
We would also ask your prayers that Addy will surpass this liver disease and we can find a perfect match for her liver to be her Donor.
- Josephine Callanta
- Fund Raiser
Latest Endoscopy and Lab ResultUpdate posted by Josephine Callanta at 05:50 pm
Addy's Liver Transplant was postponed on year 2018 since her lab results were improving until last month. She was fine but unfortunately, after her Endoscopy and lab tests done last November 26, 2020, we were advised to bring her as soon as possible to India or any country we prefer. . . . .