My name is Samira, I am 28 years old and married to the father of my two sons who are 2 & 3 years old. We live in Breda in the Netherlands.
During the pregnancy of my youngest son I noticed strange complaints mostly in my right leg. After walking for a bit i couldn’t lift up my right leg anymore. I was almost due for labor and thought that was the reason. After trying psychical therapy and not noticing a difference, I went to the doctors.
In april 2016 I was diagnosed with multiple sclerose. Something that was very unexpected for me. I had never heard of it yet I had a feeling that it was bad. Later in june 2017 they altered the diagnose to PPMS. I have the most progressive form in which you can not see approvements. This form of MS only occurs at 10/15% of the people that have MS. This also means They unfortunately do not have a cure available.
In the past two years i went from a healthy person to physically weak. The right side of me body is the most damaged. Walking is becoming a bigger problem for me. The strength in my right leg and arm has decreased. Because of this I can’t do things that I should be able to do. My breathing has also worsened. It’s hard to be confronted with my disabilities everyday. I constantly have to take things in consideration, like parking as close to my destination to save me from walking a far distance. I can’t let go of my 2 year old son because as soon as I do he will be a few steps in front of me and I have no chance at catching him. To do nothing and sit around is no option for me seeing as my disease is progressing. I owe it to my family and loved ones to not sit around and wait but to take action. At this point there is one cure at stopping Multiple Sclerose and that is HSCT.
HSCT is an intensive treatment that geresets your immunesystem and that means at the end of the treatment you should be MS free. The chance of the treatment working is 70 to 80% meaning the disease decreases and sometimes people even improve( getting their feeling back) I hope to become one of the HSCT people witch it works for with the will of allah.
Unfortunately this treatment is not in the Netherlands yet and I have to go abroad. This means my insurance does not cover it. The treatment costs around £50000. Amount I do not have and that is why I’m asking for help. A sincere dua or donation (as little as it may be) is very Welcome.
Please share with family and friends and inshallah I hope to achieve our goal.
May Allah protect and reward you for all your effort.