Help Reagan Webster Battle Disease

Reagan is a happy and energetic 2-year-old girl who loves to dance, play and have tea parties. She was recently diagnosed with a rare and fatal genetic disorder, Sanfilippo Syndrome. Sanfilippo Syndrome results from defects in a lysosomal enzyme. Children with this disease are unable to appropriately break down sugar which causes carbohydrates to accumulate throughout the somatic and central nervous system. In other words, these children who appear normal at birth will later show severely delayed neurological development and become unable to talk, walk and even feed themselves. Children with Sanfilippo Syndrome oftentimes do not live past 20-years old. they even reach their teens.   This disease affects both genders, all races, all countries and continents.  It is everywhere and the world needs to know. Reagan Today and Her Future By age 4, most children with her disease have irreversible brain damage and lose the ability to speak. As the disease continues to tear through her brain and body, she will lose the ability to walk and eventually she won't even be able to feed herself as seizures ravage her body. These devastating changes are a 100% certainty if she doesn't get treated, and soon. It is a parent's worst nightmare, and an unfair sentence for any innocent child. What would you do if you knew that money was the only thing standing between your child and their chance at a full and happy life? What would any parent do?  Please Act Today We can't let this happen. We can't stand by and watch our little girl lose everything she is, suffer unimaginable pain and frustration and ultimately die. What would we tell her big brother in a few years, when the disease has taken over completely? What would we tell ourselves? Please help support our urgent, lifesaving mission. Every cent counts. Thank you. From the bottom our hearts, with all of the gratitude and affection we could possibly offer: THANK YOU