CAN YOU PLEASE HELP THIS YOUNG MAN
update December 2019.
First the good news .
He has been on a six week trial of a medtronic insulin pump since late october and two weeks ago received funding to get one of his own from Pharmac. This has made a huge difference to his diabetes management. Also his gastroparesis management.
They have put him back on funded Lantus insulin and giving him heaps of it instead of the unfunded levemir for which the statutory authority approval for funding has not been activated by pharmac four months after he was put on it.
Now the bad news.
With the pump his diabetes nurse has told him she wants him to continue using a arm CGM sensor these costs $105 a fortnight .
Also for his gastro paresis he is now on two medications as his pancreas has stopped working and needs these two medications to digest his food.
Also his defacto relationship has broken up ( Due to health issues on her part) and he no longer has the support of his Girlfriend due to those issues.
I am struggling on my own to be able to support him at $400 a week from my own income.
Winz are not helping either who have always been uncooperative to the point of being cruel and uncaring.
His Insulation company employer laid him off in October just before he got the insulin pump due to his health issues due to health and safety concerns.
He was told if he can prove he has his diabetes and other health issues ( Depression , Leg nerve problems and Gastro-paresis under control his employer will give him his two days a week job back .
He can only have his job back if he HAS ALL HIS MED'S and THE FOOD TO TAKE THEM WITH.
Our weekly shortage is $150 to $200 a week can anyone make small donations to help cover these .
His current meds and living costs are $550 a week .
Please sign this petition https://www.parliament.nz/en/pb/petitions/document/PET_91080/petition-of-malcolm-mulholland-for-patient-voice-aotearoa?fbclid=IwAR3b5OxXvlgeh8Z0jDx9QBWwUmV8HwQTAaZpDxsMuKm9oSfzXTGUwtCVML8 as well to help the dysfunctional meds funding system in NZ get reform.
April / June 2019.
Another three months of hell .
He is enjoying his new job but is earning minimal wages as he is paid by the SQUARE Meter (M2) of insulation laid and as he cant work fast due to his ongoing diabetic health issues he still needs money over and above his wages. If he doesn't have all his meds he can't go to work which stuffs his meds funding up even more.
He has this week 6th of June had to change his insulin to a unfunded one that has been unfunded for 14 years at a minimum of $175.00 a time for 5 pens or $103 for one pen. He has also been told he has to go on to the Libre arm sensor that costs $99.00 to $105.00 a fortnight as they only last 14 days.
All the above costs mean he now needs upwards of $400 to $600 a week.
With the government only giving a pathetic 1% increase in the budget and the insulin and the arm sensors still waiting for Pharmac subsidy approval which it seems wont be happening anytime soon he desperately needs additional financial helpers as we are now down to one donor plus myself . That one donor has two type 1 diabetics in the family to deal with as well.
WE NEED ADDITIONAL DONORS SO WE DON'T HAVE TO KEEP TAKING OUT EXPENSIVE PAYDAY LOANS AT BETWEEN 365% AND 650% INTEREST RATES which is an additional cost we can't afford.
March / APRIL update .
Another month of hell.
His weekly meds costs plus his costs for food so he can go to work at his new job is now $450 A WEEK MINIMUM.
WE Have just had to find another $600 for another tummy operation due to it becoming infected again.
We desperately need additional donors so he can get to work consistently he has had the last two weeks off work as it took us two weeks to raise his operations money on top of his weekly meds costs.
WE NEED ADDITIONAL DONORS SO WE DON'T HAVE TO KEEP TAKING OUT EXPENSIVE PAYDAY LOANS AT BETWEEN 365% AND 650% INTEREST RATES which we can't afford.
By the grace of God he has got through two months of hell.
But he finally has a chance of getting established in the house insulation installation business.
He started this week at a home insulation company which is a permanent full time self employed contractor position .
Unfortunately our two regular donors have had to drop out one due to a stroke and the other due to a family members health situation just as he is getting on his feet.
We are $100 short for this weeks meds which he needs by Friday otherwise he will have to take two days off work because it is too dangerous working in roof spaces or under floors with out all his meds and $100 next Tuesday or Wednesday for next weeks meds after that hopefully he will be able to support himself with his income. Can anyone help us. If you can, can you please use the pay pal payment option as stripe payments takes 7 days to pay out to us.
Previous montjly updates .
His diabetic nurse is continuing to monitor his sugar levels etc while to continuing accessing him for a pump which they hope to fit in hastings not Christchurch now.
While applying for access to fund one for him through the dhb .
The life flight he was meant to get, after his leg operation was to have him monitored by a overseas diabetes specialist in christchurch after his operation on his legs. This is now being done by his hawkes bay diabetic nurse and his doctor .
In the meantime we need at least $100 a week to cover the remaining amount he needs for his weekly meds as he still can't go back to work to do the 20 hours a week his doctors allow him too. Which could be a month away and his doctors have also forbidden him to continue walking to work, which means we also have to find money to fix his crapped out car.
So please help.
BAD NEWS :
WE NEED $120 by Wednesday the 19th as both our regular donors cannot donate this coming week and one won't be able to until the 10th January.
We are waiting on affording another $50.00 Doctors appointment, to see what is going to happen about the INSULIN Pump assessment he was meant to get as part of the Leg nerve operation, he didn't get the assessment in Christchurch because the loan company we had a loan with which we paid off the previous night, took 46 hours to clear the payment before we could apply for another loan.
By the time we could apply for another loan, it was too late to get the leg operation and catch the life flight to Christchurch to monitored to get accessed for the insulin pump funding etc on both the Thursday and Friday.
The leg operation instead of costing only $400 landed up costing us $650 in total, (which he had on the Saturday morning following) and we had to hurriedly beg from our regular donors the extra $250 he needed and on top, not get the insulin pump accessment or the extra pain meds he was meant to get as part of the original deal.
Just another week in the screwed up NZ healthcare system.
This isn't the first time he has missed out on operations, due to our screwed up public health system not operating as it should. Every single operation he has had, has been in the private hospital because the waiting list is too long for his health needs.
GOOD news .
His pain problems in his LEGS HAVE HOPEFULLY BEEN FIXED his vascular surgeon cut the nerves in his legs in a operation on Saturday morning 8th Dec to reduce the pain he is getting that is affecting his whole body and affecting his diabetes and making it worse.
Which will enable him to get to work after he gets medical clearance.
He is now at home catching up on much needed sleep he hasn't been able to get due to the intense leg and stomach pains he has suffered.
He still needs the back up fund which is the original reason this page was set up so that if he needs an operation in a hurry he has the back up money to do it.
A part time job of only 12 to 16 hours a week plus meds costs alone being a minimum of 350 to 480 a week makes life impossible on a part time job even with his partner on a 50 hour a week minimim wage job to afford meds and living costs.
He cannot get public hospital treatment, as they just consider it to be a part of his diabetes and fob him off by sending him home untreated and putting him on a public waiting list.
So can we please please please, have some generous donors, who will see him right with his meds funding ,which will go a long way towards getting him on his feet and hopefully coming right.
He hasn't been able to get to work for the last 3 weeks due to the leg pain problem.
PREVIOUS UPDATES : November 1 to November 30th.
Type 1 diabetic with GASTRO PARESIS needs your support right now
WE DESPERATELY NEED REGULAR DONORS WHO CAN GIVE SMALL AMOUNTS, on a weekly or monthly basis, so he can get on top of his meds needs instead of barely getting by.
We now accept donations through PayPal or Stripe.
After 8.5 years of hell, my diabetic friend finally has some of his meds subsidised ( Only his diabetes meds, lantis and apidra and his other diabetic needs) but not the meds he needs for his leg problems, caused by low blood pressure and his crook nerves in his legs caused by diabetes) or the meds he needs for his tummy problems, at a cheaper rate than retail.
His meds costs each week now are $350.00 to $450 per week (depending on if he can get to work or not at his part time job), caused by increased pain as his Diabetic paresis has gone to a full blown Gastro paresis and his stomach lining is totally screwed.
He has been given a new blood monitor by his diabetic clinic nurse and his non medical needs are not covered. He still needs regular tummy operations ( Caused by the Gastro paresis which range in price from $250 to $900 ( private hospital cost) depending on the severity of the infection. SO PLEASE CAN WE HAVE SOME SMALL DONORS, SO HE AN GO TO WORK and just feel as though he is JUST a normal kiwi.
He is thoroughly enjoying his part time job which for once is a long term one not a 3 month fruit season one. For once he is starting to feel like a normal kiwi .
The main reason for this campaign is to raise Money for his normal weekly meds (over and above what friends can provide). Also additional funds are required to enable him to have a backup fund for his type 1 diabetes and the multiple health issues he has ( depression, Low blood pressure, leg pain and Gastro paresis), which means he rarely has enough money to buy all he needs each week and to pay for regular stomach clean out operations .
Under New Zealand Health and Safety rules he cannot go to work, if he does not have all his medicines available to him. He has already TWICE collapsed on the job because he didn't have enough meds to last the day. As his health is deteriorating due to this irregular money supply, which does not allow him to buy all the meds he needs every week ( Up to 15 items) also food as well . As well as living in a sleep-out in the back of a garage that causes further issues like flu etc during the winter which affects his diabetes.
This leads to other health issues that leads to him needing the private surgery for the stomach infection that is a downstream issue of his type 1 diabetes and Gastro paresis. This problem has been ongoing for the last 6 and a half years which has had an immense affect on his mental state. Also his major benefactor will sooner or later retire probably within the next 3 years and leave him in dire straights.
Here is a Facebook Group page showing the scale of the unfunded drugs problem in New Zealand https://m.facebook.com/groups/171564126882442..
This is why we are running this fund raising, because of the issues above that are result of the under-funding of Government funded medicines, to stop the need for expensive hospital surgery and the deterioration of his health. He has just been given a new glucose monitor that sends to his diabetic nurse. These are not subsidised and cost $99 each when needed to be replaced. His antibiotics for his tummy problem cost $80 and pain meds $30 are just some of his meds costs.
So thank you for reading and please make a small donation.