In September 2018, Oscar was diagnosed with acute flaccid myelitis (AFM), a rare polio-like condition that led to sudden paralysis below his neck. At just 12 months old, he spent a month in intensive care, undergoing numerous surgeries (emergency spinal cord, tracheostomy, gastrointestinal) and tests (MRI, CTE, spinal taps). Once stabilized, little Oscar was transferred to a children's hospital outside NYC to begin acute rehab.
Throughout his ordeal, the little wonder has kept his cheerful spirit and mischievous attitude. He loves to play musical instruments, read stories, blow bubbles & create games that require his parents to repeatedly get up at 4am to retrieve his soother.
Despite Oscar’s positive demeanor, life’s trial is just beginning for his parents. Mom (Alex) & Dad (Nick) have put their careers on hold and relocated outside NYC to be at Oscar’s side and oversee his 24 hour care. It's anticipated that Oscar's recovery journey will be one of great length, as well as significant financial cost associated with around-the-clock skilled care, specialized equipment, treatments, therapies, transportation, and physical rehabilitation.
Oscar has continued to show his resilience, strength and bravery throughout this entire experience. We are all learning about the boundless courage it takes to fuel his path to recovery.
Alex & Nick have been humbled by the outpouring of love from their family & friends