Our sister, Nithiya, was diagnosed with Antiphospholipid Syndrome (APLS) in 2018. It is an auto-immune disease where the antibodies 'attacks' the person's own body resulting in blood clots. She is getting her regular treatments at Pusat Perubatan Universiti Malaya (PPUM).
By the time she was diagnosed, clots have formed in the pulmonary arteries in her lungs. This has significantly reduced her mobility and have increased risks of other organ failures. In August 2019, she was admitted for kidney biopsy where she became unstable and was hospitalized for a month. During this time, her stressed immune system have resulted in Idiopathic thrombocytopenic purpura (ITP). It is a bleeding disorder in which the immune system destroys platelets.
By Oct 2019, with all these complications she was further diagnosed with chronic thromboembolic pulmonary hypertension. It is a rare form of pulmonary hypertension, a disease associated with abnormally high pressure in the blood vessels of the lungs, caused by the formation of blood clots.
We consulted a well-known cardio thoracic surgeon who then looked into her case to study if she will be viable for a surgery to remove the clots. Unfortunately, our hope was crushed when we found out the surgery is not an option for her since her heart is very weak and unable to survive the intensive procedure. Additionally, the position of the clot is in such a place that it is impossible to be removed. This news devastated our sister further.
Due to her weak blood circulation, her kidney and liver was affected and she is also prone to multiple infections. Within the past 1 year she has been rushed to PPUM Ememrgency multiple times due to infections and difficulty in breathing.
In the most recent event, our sister was rushed to PPUM Emergency on 9th January 2020. At that time, her heart rate spiked to 119 bpm and she became unresponsive. A week before this she was experiencing psychosis symptoms and she was not digesting any food. At the time of admission, she was also heavily dosed on depression medicines.
*Psychosis - an abnormal condition of the mind that results in difficulties determining what is real and what is not
As at the time of writing this (17th Jan 2020), she is still in hospital and her condition has worsen. She is currently in a Catatonia state.
*Catatonia - abnormality of movement and behaviour arising from a disturbed mental state.
- Neither responding to us nor the environment
- Not speaking
- Not consuming and food or fluid
- She is holding her body in an unusual rigid position (hands raised)
- Resisting us/nurses when we try to adjust her body
- Staring into space (if we open her eyes)
- Her liver shows high Bilirubin level
To date, the doctors have done the following to find out the root cause of her state:-
- Lung and Kidney ultrasound
- Lumbar puncture
- Send the lumbar puncture sample to KPJ since they do not have the right equipment
- Brain CT
- Lung CT
- Multiple blood test (on a daily basis)
- Intravenous Antibiotics - to treat infection
- Urine test
- Intravenous feeding (since she is not ingesting any food on her own)
- Multiple intravenous fluid therapy
We are still awaiting for some of her lab results and currently we and the medical professionals are clueless as what is going on with our dear sister.
She is expected to make a full recovery (God’s will) in a couple of years time, when she comes out of her catatonia state. She will be needing assistance with medical bills, hospital trip expenses, medicines and she also requires an oxygen generator machine and a wheelchair. The expected expenses is RM 50 000 per year.
We seek some financial assistance as we anticipate her stay in the hospital to be very long, we also expect her hospital bills to go higher. She is not able to teach at the moment and she has been unemployed for the past six months.
Unfortunately, we, her family have exhausted all our resources for her medical needs for the past two years and currently unable to meet up our sister's current and future expenses.
Nithiya has been living a passionate, fun, adventurous and most fulfilling life before she fell ill. She never failed to be a dedicated teacher, an understanding friend, a supportive daughter, the most sporting aunt and most of all a loving sister. Those of you who have known her will know how infectious her bubbling energy could be.
At such, we truly appreciate your donation no matter how small, it will definitely make an impact and make Nithiya’s life better.
“Teacher Nithiya was like an oil lamp in the night. She shines brightest when she is in her element, i.e our classroom. She always had this never ending energy and never fails to inspire us beyond the four walls of our classrooms. When she spoke, we were immediately transported into another world where we were free to fly on the wings of freedom and knowledge. With heavy albeit hopeful heart, we are penning this to help her.” - Miss Nithiya’s accounting students, class of 2017.
Queries can be forwarded to : [email protected]