Help Neil Rally Against Cancer

Update posted by Neil Michael Namoro On Oct 09, 2019

hey nerds!

i finally had my last treatment session earlier today, HUZZAH! it felt good finally being on the last leg of my treatment session; just one more week of enduring chemo side effects, well at least the immediate ones, and i'm done for now.. it was nice hearing "congratulations" from the nurses in the chemo therapy unit at FMAB-PGH for finishing my 8-session cancer treatment, they hope i would never have to come back for treatment again. i hope so too guys, i hope so too.

so for now, we are just focusing on recuperating from all the stuff that the chemo stuff have done to my body. need to continue this healthier lifestyle that my wife have been pushing me to: eating a lot of fruits, more veggies in my diet, no more processed food, less eating from fast food, and hopefully when my body have recovered, to exercise more. i guess i really have no choice but to turn a new leaf with my health, have to make myself less of a cancer risk than before; i don't even smoke or drink alcohol and i still got unlucky enough to get cancer, so i need to be extra careful.

my oncologist said that i don't really need to have any more check-ups anytime soon, just need to do a PET scan 3 months from now. "enjoy the coming holidays for now" he said, no need to stress myself thinking about cancer stuff. and if the PET scan results are good, the next check-up would be around 6 months after that, and then just the annual ones after that. and hopefully that's it, hopefully no more cancer coming back and just me trying my best to return to normalcy.

so now i would like to thank my family for all the support they have given me through all of this, for keeping me sane and calm in those times that i lose my temper and patience when everything feels like hell, and for always making sure that i always look at the positive of things and be hopeful through all of this. thank you to my brothers who always make time to accompany me in my medical appointments. thank you to my two moms, who even though they are dealing with their own medical problems, they never fail to make time for me and give their love and support. and thank you to my wife for being my rock, i love you so much.

thank you as well to all my friends who are always keeping in touch and checking up on me, making sure that i am still kicking it and doing well, you guys are much appreciated. and thanks as well to those who are always there for me to talk to about my cancer shit, sometimes you just need people to talk to who can relate and knows exactly what you are going through to put you into perspective, and i am so grateful for you guys.

of course, again i would want to give thanks to everyone who have donated to my medical fund crowdsource campaign, you guys are heroes. i am forever grateful to you people, i would never would have been able to finish my treatment on schedule, or even at all, if not for all your help. i feel so very lucky to have so many generous people surrounding me; its crazy thinking about the length some of my friends are willing to do just so that they would be able to help in generating funds for my treatment, or the tremendous support i got from my colleagues (people from japan, cambodia, china, cebu, and manila offices all helping out!), or even the help i got from people i haven't even talked to or seen in a million years! my heart is so full of gratitude for all you people, so thank you thank you thank you!

and for all the people who have sent their positive vibes and prayers, thank you as well. i may not be a religious person, but do know that i do appreciate all of it, and i know you guys mean well, and so i am thankful for you guys.

so yeah, for now just need to focus on being healthy and recuperate and hopefully come back to work by november and hope that everything continues to turn out well about this cancer situation. the treatment is done, let's just hope now that i end up in the positive side of cancer statistics. :)

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Update posted by Neil Michael Namoro On Sep 18, 2019

i just finished my 7th treatment session earlier today; just one more to go! woohoo! :)

also, i have got the results of my ct scan yesterday and when i sent them to my oncologist, he said: "good results." i had ct scan of my neck and chest last friday, and of my abdomen this monday; and overall the results have been good, i think. one of the main impression from the results says that my chest scan is "negative from mediastinal lymphadenopathies", which i assume means the mediastinal tumor that i have is now undetectable. the other thing of note is that there were no abnominal and cervical lymphadenopathies seen from my abdominal and neck scans, it seems (again, i assume, coz i'm not a doctor) that my lymphoma have not spread to other parts of my body, which is great! i will know more for sure when my oncologist flies back to the country and i have talked to him in person on my next check-up.

there are some anomalies found in my ct scans, like thickening of my thymus gland, and some hypodensities found on my left hepatic lobe, but those still need some follow-up with specialists to know what's causing them to be sure. hopefully everything is fine, fingers crossed.

anyways, we're almost done with the cancer treatments, three more weeks for my final RCHOP anti-cancer medicinal combo. i can't wait for all of these to end and rid myself of this fucking cancer and go back to living my life normally.

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Update posted by Neil Michael Namoro On Aug 08, 2019

hi everyone!

i just finished my fifth chemo session earlier today, we are now on the 2nd half of my treatment. just 3 more to go! huzzah!

the side effects are much more tolerable now; i don't get nauseous anymore or have vomiting episodes, but i still get days where i don't have appetite and have trouble swallowing. but the week after a chemo session, most of the time i feel weak, and i just sleep it off whenever that happens.

also, since my oncologist noticed that my WBC count doesn't come back to normal levels a couple of weeks after chemo, i am now taking Pegylated Filgrastim to make sure my WBC levels will come back to normal before the next chemo sessions. added protection so that i am less prone to getting sick while under treatment, although it's quite expensive. ugh.

anyways, i'm glad that so far i haven't gotten any more medical complications, and that i am getting better after each chemo session. after the first one, my swelling in the neck and face was gone. after the second, i can now sleep on my right side without triggering heart palpitations. after the third, the tumor is now half of its former size. after the fourth, i got cleared by my pulmonologist coz there's no more plueral effusion in my right lung. things are getting better and i just hope this continues and that after the 8th session this fucking cancer would be gone for good.

btw, i would just like to thank all the people in the local gaming community that have spend so much effort to host events and gaming tables this past couple of months so people would be able to donate to my medical fund campaign. shout out to Downtime Dudes and Play Without Apology, as well to all who have donated and played in their events. thank you very much, you guys are fucking heroes!

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Glad you’re responding so well to treatment, Neil! :D

Pheelyp Aytona

Update posted by Aug 09

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Update posted by Neil Michael Namoro On Jul 19, 2019

hey nerds!


so some cancer update for those interested: i just got the results of my latest ct scan and according to it, the mass have "significantly decreased, measuring 2.6 x 4.1 x 8.4 cm compared to 5.7 x 9.9 x 10.8 cm previously." there are also some details about the mass effects on my superior vena cava which now only have partial opacification (was previously unopacified). so i guess the treatment is working, you guys!

i just hope this trend continues and will work out in the end. on my next follow up with my oncologist we will know if we still need to go thru the whole 8-session treatment or just the 6. anyways, on wednesday it will be my 4th chemo session; we're halfway there guys! :)

#FuckCancer
#HelpNeilRallyAgainstCancer

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What welcome news! 😀

Pheelyp Aytona

Update posted by Jul 20

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Update posted by Neil Michael Namoro On Jun 28, 2019

hi there!

so yeah, yesterday was my third chemotherapy session! we're halfway there through my treatment plan, huzzah! (well, hopefully halfway there. we'll find out soon if i need 6 or 8 sessions in this treatment, but i am hoping to just need 6.)

yesterday was very much straightforward, not that much hassle in getting and during the treatment. just played a lot of StardewValley while waiting for the chemo meds to finish. although i did felt tired in the afternoon, probablybecause of all the walking i did to go to the drug store to buy my post-chemo meds.

hopefully this next 3 weeks would be the same with the last post chemo session, just a few days enduring the extreme side effects (3 to be exact), and feeling okay for most of it. just needed to be going for follow ups with my pulmonologist to check the fluid levels in my lungs to avoid any more complications. and being doubly careful to avoid getting sick from anything.

and then in the coming weeks i will be coordinating with my oncologist to know what lab tests to take to know that status of the cancer tumor and how it is reacting to the treatment so we would know how many more chemotherapy sessions do we need to dissolve this cancer shit out of my body. here's to hoping for the best.

btw, thank you for all the people who are doing all these work to keep supporting me with my fight against the big c. of course my family who never fails to keep me sane and making sure i don't explode when i get too aggitated. thanks a lot for my d&d friends for hosting all these games and charity events so that people would be able to donate to my medical fund campaign. and for all the people that continue to send their positive thoughts and prayers, thank you as well.

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Update posted by Neil Michael Namoro On Jun 06, 2019

hey nerds!

finally, i was able to finish my 2nd session of chemotherapy today. this have been delayed for a couple of weeks now because of other medical complications (i got feverish for a week, then got hospitalized for another week because of pneumonia). this is the problem with being immuno-compromised when under chemotherapy, you can get sick very fast if you are not being very careful. so now i have to be doubly careful with a lot of things to avoid getting sick.

anyways, so now i am preparing myself for the incoming onslaught of post-chemo side effects that will come on the coming days. the loss of appetite, trouble swallowing, waves of nausea (especially in the morning), vomiting, being tired all the time. the first week after chemo is fucking hell. i wish there are ways to avoid it, but it seems that i just have to endure it. there were a couple of times after my first chemo session that i was just crying out of frustration because of how bad i was feeling on those days.

for now i feel fine. i was able to eat what i want to eat and looking forward to that carrot cake for later. here's to hoping that there won't be any more medical complications that will pop-up, and that i would be able to endure the side effects much better this time around. fingers-crossed.

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I’m glad that things seem to be looking up! God bless you, Neil. :)

Pheelyp Aytona

Update posted by Jun 06

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Proverbs 4:20–22  “My son, pay attention to what I say; turn your ear to my words. Do not let them out of your sight, keep them within your heart; for they are life to those who find them and health to one’s whole body.” Exodus 15:26 “For I am the Lord who heals you.” Jeremiah 30:17 “I will give you back your health and heal your wounds.” 2 Chronicles 7:14 “If my people, who are called by my name, will humble themselves and pray and seek my face and turn from their wicked ways, then I will hear from heaven, and I will forgive their sin and will heal their land.” God bless Neil!!!

Arlene Hicarte

Update posted by Jun 06

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Update posted by Neil Michael Namoro On May 16, 2019

Because we ended up using R-CHOP treatment instead of the initial recommendation of my oncologist which is using BR (Bendamustine-Rituximab) treatment, I am changing the target amount of this fundraising from 1.5M to just 1M now. I think that is enough to cover the possible 6-8 treatment sessions and all the needed medical tests and medicines.

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Update posted by Neil Michael Namoro On May 02, 2019

first for all i would like to give big big thanks to each and everyone who have donated to my medical fund campaign, right now we have already gathered enough to cover maybe 4-5 treatment sessions. i am overwhelmed with the support you guys have given. thank you all so very much. you guys are heroes!

so anyways, the fight against the big c has began; my first treatment session was done earlier today and now i just hope i don't get hit hard with the side effects which are expected in the next few days.

aside from the hassle of getting one of the medicines that i need on time because of delivery scheduling issues, the whole process was pretty straightforward. first i was given medicine to avoid allergic reactions to the chemo stuff, and then medicine to avoid vomiting, and then the main stuff started: rituximab was given, then doxorubicin, and then cyclophosphamide. good thing i didn't have any negative reactions to the medicines, something good to look forward to in the next sessions to come.

so while waiting for the session to be finished, i just read through a bunch of comic books that i haven't read yet and asking the nurses on what to expect after this and general things of what to do and not do.

so for now, i am just preparing myself for any side effects that might come in the next 2-3 days and do my best to overcome them. and keeping myself healthy until the next treatment session comes up in 28 days.

one down, possibly 5-7 more to go! aja aja fighting!

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Update posted by Neil Michael Namoro On Apr 25, 2019

So after a week of crowdfunding, people have donated enough for me to be able to get 3 sessions using the R-CHOP treatment that the oncologist suggested. Although this is not our first choice - the Bendamustine-Rituximab treatment was the one the oncologist preferred - this one is more affordable for us, and the oncologist says that this treatment does still have very good success rates with patients. Below is the clinical abstract indicating the costs of the treatment (minus other hospital bills and doctor fees):

We are still waiting for possible medical discounts from Roche and one other government agency that I went to yesterday. Hoping for possible results from those venues. The discounts will greatly help stretch the funds that we have.

I also possibly be moving the first treatment session on May 2, 2019, barring any schedule issues. Good luck to me!

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Anonymous

Backed On Oct 27, 2019 Amount Hidden

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Juan Kuswandi

Backed with ₱100.00 On Oct 18, 2019

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Fight on, Neil!

Brandon Cole

Backed with ₱50.00 On Aug 25, 2019

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Hi everyone, please help my family for my 3 year old son with Congenital Heart Disease with Tetralogy of Fallot and Ventricular Septal Defect. He undergone Patch Repair for VSD and Total Correction of TOF last August 14, 2019 at Philippine Heart Center and we are financially exhausted of his medication. We are seeking for financial help for his continues heart medication. Thank you and God bless❤️ For nonpaypal donations I have bank account BPI(BANK OF THE PHILIPPINE ISLAD) 8909191107 CHONA B. LUMENARIO

Chona Lumenario

Posted On Aug 19, 2019

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Hi everyone, please help my family for my 3 year old son with Congenital Heart Disease with Tetralogy of Fallot and Ventricular Septal Defect. He undergone Patch Repair for VSD and Total Correction of TOF last August 14, 2019 at Philippine Heart Center and we are financially exhausted of his medication. We are seeking for financial help for his continues heart medication. Thank you and God bless❤️

Chona Lumenario

Posted On Aug 19, 2019

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Beanbo

Backed with ₱500.00 On Aug 17, 2019

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Kro’goth

Backed with ₱100.00 On Aug 04, 2019

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Anonymous

Backed with ₱200.00 On Aug 04, 2019

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Anonymous

Backed On Aug 04, 2019 Amount Hidden

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Hi Neil, we hope you will recover soon!

Monstar Lab China

Backed with ₱24198.00 On Aug 01, 2019

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