Hi! I am Neil and I just got recently diagnosed with a rare type of lymphoma.
That picture above was taken March 28, 2019 when I was admitted at the hospital because doctors found out that I have thrombosis in a vein in the right side of my neck. Through a series of x-rays and ct scans, we found out that I have this large mass inside my chest; and this mass is currently wrapping around some blood vessels that caused the thrombosis in my neck, and the breathing problems that I have been experiencing. I had to go through a mediastinoscopy with biopsy to get a sample of the mass, and through that operation the doctors also found that I had pleural effusion in my right lung and they had to stick a tube at my side to drain those fluids out.
And after 2 weeks of being in the hospital going through several medical tests and another week and a half of waiting for biopsy results (we had to go through 2 panel tests to find out what kind of lymphoma I have), we finally found out that I have a rare type of lymphoma called "Primary mediastinal large B-cell lymphoma".
We have consulted with an oncologist (the chairman of Philippine General Hospital's Cancer Institute) to know what treatment plans I would need to best beat this disease and the doctor suggested 6-8 sessions of targeted drug therapy. This targeted drug therapy, in his experience, has the best rate of success with the type of lymphoma that I have.
Unfortunately this treatment plan is quite expensive. The targeted drug therapy uses two main drugs; one of those is Rituximab and it costs around 90,000 pesos (1,740 US dollars) and the other one costs around 30,000 pesos (580 US dollars). And those are just the the medicines that I need, there are still other hospital bills and doctor fees to consider. We are currently estimating the costs of each session to amount up to 150,000 pesos (2,900 US dollars) and multiplying these costs to possibly 6-8 sessions just jumps to an amount that I do not have access to.
(NOTE: I will update this page to show exact hospital bills when we already got the treatment protocol details that shows what and how much we need per treatment session.)
My family and I have been doing every thing we can right now to come up with the funds needed for my treatment plan. I am currently looking for possible loans, we are asking for help from relatives and friends, we are squeezing the hell out of our savings, I am applying for possible medicine discount through Roche Patient Access Programme, and looking for other institutes and government programs that could help bring down the costs. But right now, we are nowhere near the amount needed to cover the possible 8 sessions (once every 3 weeks) over the next 6 months. I am planning on having my first treatment session by next week, possibly by May 3, 2019.
I still look forward to living a long healthy life with my loving wife and my adorable 5 year old son. I still look forward to spending time just chilling with my wife at home watching movies, and going on dates eating at our favorite restaurants, and just growing old together. I still look forward to watching my son grow up, go through school, be the best person he could be. I still look forward to making so many memories with them.
That is why I am doing this campaign to fund my fight against this disease that threatens my life. I hope this campaign would help me with the funds that I need to make myself healthy again. I hope the people that will be reached by this campaign would be able to help. I will forever be grateful for any help we will get.
We also recommend that if you can, just donate directly through bank deposits to avoid the additional fees when donating through PayPal. You can deposit through our BDO account: Account Name: Neil Michael Namoro / Account No: 0014 2002 5390.
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