Help my 1-month old daughter with her Open Heart Surgery

Update posted by Clement T On May 29, 2021

Hello! My daughter is finally home after 7 days in hospital, which has been one of the most draining weeks of my life. The good news is that she's doing well post-surgery, with the TOF fixed and the symptoms greatly reduced! She's breathing much easier these days (and eating a lot more!), the doctors are happy, my wife & I are happy (and relieved) so all's good for now!

Final bill will be out on Monday so I'm not looking forward to that, but at least we get 2 days to rest & recover from the long hospital stay and to get back some semblance of normalcy.

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That’s great to read, Clemmy. All the best for her recovery!

Korbinian Brunner

Update posted by May 29

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Update posted by Clement T On May 25, 2021

Hello! A quick update on her condition. My daughter is still in ICU but recovering well, the doctors have taken her off the ventilator and most of the the sedatives, although her lungs have not fully recovered which is affecting the breathing. As a result, they have put her on oxygen to support the lung function (preventing collapse), but that means at least one extra day in ICU which is racking up the bills.

I'm thankful for the support so far, but as you can see, this bill will be the death of me! Do note that this is for the hospital only, where the surgeon and doctor fees are separate, and looks to be on track with the estimated bill size of S$100,000.00. Please help to spread the word as my family really needs the support right now

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Update posted by Clement T On May 22, 2021

Today has been a very long and emotionally draining day, but to cut to the chase, all is well, the surgery was a success and my daughter is in recovery at the Intensive Care Unit.

The day started really early at 06:00am, having to get her fed and changed as we set off for the hospital. It was quite a lengthy admission process, from sorting out the administrative documents, putting down the deposit (yes, a chunk of money has already gone out), warding and being brought to the waiting area at the Operating Theatre, where the surgery only commenced at around 12pm where it was initially slated at 10:30am. There was a delay due to a medical emergency elsewhere which led to one of the doctors being held up, so we were just waiting and waiting while trying to keep a VERY hungry baby calm.

There was an immense sense of dread as I handed my daughter over to the nurses as they brought her in, not knowing if that would have been the last time that I saw her, but at the same time, an odd sense of calm did come over me as I put my faith in the medical team & modern medicine to be able to resolve the issue.

Next came the wait, which, as you can imagine, was excruciating, so a thank you goes to those who sent kind words and distractions my way on Twitter. My wife and I are still absolutely flabbergasted at the amount of support that everyone has been showing to us, whether it be the kind words of support, helping to spread the word or any financial contribution no matter the amount, so thank you all from the bottom of our hearts.

The call from the OT came at around 5pm, basically saying that the operation was done, the surgeon was finishing up and that we would get to see her soon. The emotional load that this little call took off was simply immense, and after a meeting with the surgeon who explained what he did, we were just so relieved that at least this portion is over and done with.

My daughter will be in the ICU for about 3-4 days, where she's current hooked up like this poor baby below. It's an absolutely heart wrenching scene, bit thankfully, the nurses did cover her up with a little towel so that we didn't get that same visual at first glance. The next 6-8 hours post op will be critical as they will be monitoring for bleeding and fluid accumulation, but the staff are very professional and attentive so I'm sure it'll be ok, although it's a thought that will keep me up tonight. Will be back tomorrow to check on her, where hopefully the nurses will slowly start feeding her milk though a tube, with the good news is that she's as cute as ever and seems to be doing just fine.



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Update posted by Clement T On May 21, 2021

We went in for the pre-op checks yesterday which included a Chest X-ray, ECG for heart and various blood tests to get the required information for any blood transfusion required during or after the surgery. Poor girl cried so much when they were drawing blood (had to get pricked twice), but thankfully, all the scans and checks were ok and we are good to go for the surgery tomorrow.

I'm spending my last full day at home with her before the operation while mentally preparing myself for what would be an excruciating wait. By this time tomorrow, in 24 hours, everything should be done and dusted and we will be on the road to recovery

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Anonymous

Backed with $150.00 On Jun 22, 2021

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I wish you all the best with your child.

Anonymous

Backed On Jun 22, 2021 Amount Hidden

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Sorry I can't really help much

Mathieu Van Nevel

Backed with $16.00 On Jun 20, 2021

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Anonymous

Backed with $400.00 On Jun 20, 2021

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Anonymous

Backed with $5.00 On Jun 18, 2021

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Guest

Backed with $10.00 On Jun 18, 2021

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Lowry Sweney

Backed with $100.00 On Jun 17, 2021

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Good luck!

Anonymous

Backed with $75.00 On Jun 17, 2021

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Wishing the best for your little one from Albania

Eneid Lika

Backed with $30.00 On Jun 17, 2021

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Lorenzo Vertemati

Backed with $5.00 On Jun 17, 2021

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Clement T

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