Help me to pay for my husband medical expenses

Update posted by NOR HAYATI MOHD NAWI On May 07, 2019

Dear friends and acquaintances,

a few days ago I have upload the update, but somehow it was not on the update. So now I have to start all over again.

on 24th April, my husband was admitted to Hospital again, that evening, I with the help of my 16yo son and 14yo daughter to clean my husband, we found that his diapers was soaked in blood and faeces. So we rush him to ER, and arrive in hospital at around 9:30pm, after the firsts screening, the ER doctor was suspecting him having diverticular disease. the later moved him from Yellow zone to Red Zone and to be admitted in ward.

my kids are with me at that time, we all waiting for him to be warded, and at around 3:30am only they were able to find a bed for him in ward. after we make sure he in what ward, we were so tired and exhausted left him in hospital. we reached home at around 4:00am. The next day is school day and work day for me too. But we all so exhausted, we skipped everything and sleep.

In the morning, the hospital call me, informing that they gonna do a colonoscopy on him. which I had given consent the night before. still groggy and fuzzy, I told them that I'll be there before noon. Once I arrived in Hospital at around 10:30 am, they had a result but cannot confirmed whether it is diverticular disease or not but they can spot a some sort blood clot in the intestines. the doctor had told me that this is common for a comatose unresponsive bedridden patient. After all it is been more than a year for him in this situation. After, they stabilised him, they allowed him to be discharge last week but he have to be admitted again this 15th May.

It's been a while since I update, this is thus far he has not change much, physically he is ok but he still unresponsive and we have to care for him, feed him, clean him, monitor his blood pressure and all daily routine which I do with only help from my kids. We cannot afford to hire any private nurse and we have no close relative to help. I am the sole breadwinner and now the bills are piled up and I'm behind all the bills. It is a humbly experience. When you in desperate situation and in need of support but not a single relative show up to help. They all keep their distances and we shall remember. However, friends and strangers had offer some help and their thoughts and prayers are well received.

Sometimes, I just need some shoulders to cry on and to rest but the situation does not permit it. Over here in small town in Malaysia, there is no NGOs or any support group that I know of. I feel so alone.

Few friends and acquaintances always said that I'm a strong woman but actually I'm not. Really. If given choice, I would not want this and my kids to suffer too.

The kids are helping but emotionally they are very stress and tired and it effect their schooling and study. I stand strong so that my kids did not see that I'm slowly weakened with physically and emotionally tired. I'm not sure how much longer we going to face this and it is going down hill very fast and financial ruins.

some kind souls (you know who you are and I am really appreciate your kindness) also have help us financially by directly donated into my Bank account which really help us to get by day by day, so that we always have food for us and also special formula milk for my husband.

Ramadan has started and this is the second time we are not celebrating anything. No new clothes for kids, no special food for Eid, no one to visit and no one visit us. Last year, what we did is locked up the door and stay inside for the whole week of Eid celebration.

I'm very new on this campaign and still do not know how to withdraw the fund, so I'm going to try to withdraw some. I also want to take this opportunity to thank you all your kindness and donations. Please rest assured that I'm very grateful to you all.

below are my husband photo taken in hospital (against the hospital rule) but I just don't care now. This was taken last week. Please help us to survive this.

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Update posted by NOR HAYATI MOHD NAWI On Feb 25, 2019

Today is 24th February 2019, It is been almost 10 months since, my husband had his brain surgery due to incident at our local park. All this while, he is still unresponsive and vegetable. He need constant care 24/7, we need diapers, urine bags, urine condoms, wet tissues, dry tissues, phlegm suction catheters, blue sheets, syringes, special formula milks, etc. those things definitely for everyday used, and thanks to all of your who have donated directly to my personal bank account, have help a lot in everyday need. Please if you have some to spare we really appreciate it.

Now to update, on 24th January, my husband was again admitted in Hospital due to infection from the previous cranialplasty surgery to insert back the bone onto his forehead sometime in October 2018. All this time the area they stitched is healing well except for the right side of his head that still have the blood clot and since then, we do not dare to remove it as it will started to bleed. A week before he was admitted, (i.e. on 24th January) we notice that every time he cough hard, a little blood seeping down from the blood clot but we just clean the are. However, after a while the blood clot falls off and after we clean it we notice that the are where the blood clot is situated there is a metal exposed and every time he cough the blood seeping from it. We then rushed him to hospital at emergency department. After few tests and CT SCAN, they found that he have some infection and was put on emergency surgery list. However, due to the limited operation the doctor only able to operate on him on 31st January. While he was on the surgery waiting list, he was on fasting since then.

The surgery last about 5 and half hours, right after surgery, he was wheel to ward, I was there also, after that I started to notice that he start having a convulsions. The convulsion did not stop even though the doctor keep increased doses of the seizure meds. The convulsion last him for two week and at the end the seizure only limited to facial and mouth twitching.

After a month in hospital he finally discharge but the doctor's prognosis was not good. according to the Doctor my husband may not be able to recover or able to wake up or response to us due to the severity of this frontal brain injury. We acknowledge and accept the doctors' prognosis, right now we only hope that we could ease his pain and suffering. In mean time I cannot afford to pay for all his medical equipment and accessories, all the special formula milks, diapers, syringes, Ryles tubes, Urine bags & condom catheter, wet tissues, dry tissues, etc. So thank you everyone for your kind donation we really need it.

I shall update again if there is any changes in his condition. thank you and god bless.

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Update posted by NOR HAYATI MOHD NAWI On Dec 16, 2018

Dear friends and acquaintances,

Thank you for all your generous donations, I'm very sorry for not updating my husband situation, I'm very new to this, okay, as of to date, 16th December 2018, it is been 9 months since the incident, and he is still unresponsive, last week he was having fits 3 times within 3 hours, I was so worried, we rushed him to emergency hospital, however, they send him to different hospital and I have to argue with the emergency doctor there to send him to the hospital which he had record, after much complaint and insults, we have to hire a private ambulance to deliver him to the emergency department in the hospital that have been treating him since the incident. this have cost us extra. There, the doctor at his Hospital, clearly agrees with my decision to send him to the hospital that he have record on.

There, they did another CT scan, this is because he did not only have fits but also vomiting, after they stabilise him, they admitted him in ward for observation and was discharged 4 days later. The thing is that he is still unresponsive and still need nursing care 24/7, we have to feed him special formula milk through Ryles tube and still require diapers, gloves, wet tissues, dry tissues, suction catater (this is because he have to put a tracheostomy), we also have to use UriDom (a condom for his urine) and Urine bag and all other accessories for his care.

Now, I'm the sole-bread winner in the family and I do not have any close relative that could help ease the burden. According to the Doctor who is in-charge of Neuro-rehab, he may be admitted again in January for stimulations of his brain to see whether they can stimulate him to response. Another medical expense for me to bear.

I hope with this update, you all can understand my situation. Thank you for all the help, kind words and prayers. May God bless you all and repay your kindness in abundance.

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May your husband get well soon. God bless. Do keep us updated with his condition.

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