Help me beat myocarditis

(CROATIAN BELOW)

Hi people! I'm Zrinka and me and my heart have been having an ongoing battle for about 8 years now. When I was 17, I had a severe heart burn that landed me in the hospital and it turned out to be myocarditis. It is a heart muscle inflammation caused by viruses or bacteria, but can also be caused by other numerous things and can be autoimmune (https://www.mayoclinic.org/diseases-conditions/myocarditis/symptoms-causes/syc-20352539).

The doctors in my hometown didn't react properly, because they didn't know what it was and so I ended up with scars on my heart. However, after numerous check-ups I was told that I shouldn't have a problem with it anymore and I went to lead a normal and healthy life. However, that changed in April of 2018 and it hasn't stopped since.

Since then, I have been hospitalized at least once a year (but usually more) for a reoccurring myo(peri)carditis and still to this day I have not received an answer of why this is happening to me. I don't have a proper diagnosis nor do I have the proper medications to take for it. This condition has brought me severe physical pain and is to this day preventing me from having a normal life. I can't go out of my house without worrying if I'm going to catch a virus or bacteria that is going to inflame my heart and I can't work since I can't do prolonged physical activities. I also had to stop attending college for a while, which has caused me to go broke, since I was denied access to a scholarship that I was getting because of my good grades. In addition to that, last year (in 2019) after almost a year of mind-numbing headaches that lasted for weeks straight, me crashing into things, things falling out of my hands and having severe vertigo, I was diagnosed with a, thankfully, benign brain tumour. Luckily, the tumour is not growing right now and is not malignant, so at least there is that.

I am beginning to feel desperate, because not only am I not getting answers about the state of my health, I am also not being taken seriously by the public health workers who keep telling me that everything will be fine since I am young. My heart has now suffered five of these inflammations and I was told that the first one would be final. They are not actively engaged in trying to discover what is wrong with me and I'm starting to feel weaker every day both physically and mentally.

I need help. I need to collect donations in order to go to private clinics and do everything that can be done in order to find out what is going on with my heart and to get the help that I need so I can start living as normally as possible and get the right treatment or go deal with it surgically (i.e. get an operation). I am asking for help because I feel that after 8 years of dealing with this alone (and going to public hospitals) that there is no other way of discovering what is going on.

I thank you in advance for whatever your help may be!

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Bok ekipa! Moje ime je Zrinka i ja i moje srce borimo se jedno s drugim već skoro 8 godina. Nakon jake boli u prsima, sa 17 godina završila sam u bolnici s miokarditisom. Miokarditis je upala srčanog mišića, a uz brojne razloge zašto do nje dolazi, najčešće ju uzrokuju virusi i bakterije. Osim toga, može biti i autoimuna.

Pedijatri u Čakovcu nisu reagirali pravodobno, jer prvih par dana nisu znali što se točno događa pa mi je zbog toga srce dobilo ožiljke. Bez obzira na to, nakon mnogo pregleda rečeno mi je da sa srcem više ne bih trebala imati problema i četiri sam godine nakon toga živjela normalno, uz preporuke koje su mi doktori dali. No, to se promijenilo u travnju 2018. godine.

Od tada završavam u bolnici barem jednom godišnje zbog recidivirajućih mio(peri)karditisa te do dana današnjeg nisam dobila odgovor na pitanje zašto se to meni događa. Nemam točnu dijagnozu, s obzirom da pored svih dijagnoza pišu upitnici, niti imam odgovarajuću terapiju. Ovo mi je zdravstveno stanje donijelo jake fizičke bolove te me sprječava u življenju normalnog života. Ne mogu izaći iz stana bez da se bojim hoću li ili neću pokupiti neki virus ili bakteriju koja će mi upaliti srce, a ne mogu ni raditi, s obzirom da se moram držati podalje bilo kakvih dužih fizičkih aktivnosti. Osim toga, već treću godinu za redom stiskam pauzu na studiranje, zbog čega sam financijski u teškom kaosu, jer mi je oduzeta stipendija koju sam dobivala. Uz sve ovo, prošle mi je godine (2019.) nakon oko 9 mjeseci mučenja s jakim glavoboljama (koje bi trajale tjednima) i vrtoglavicama otkriven tumor na mozgu. Uz vrtoglavice i glavobolje, dugo me je mučilo i to što sam se popikavala sama na sebe, gubila ravnotežu i što su mi stvari padale iz ruku te mi se mutio vid. Ni tad me nitko nije ozbiljno shvaćao. Tumor je, na sreću, benigni i ne raste, što je super vijest.

Počinjem se osjećati nemoćno, jer ne samo da ne dobivam odgovore o stanju svog zdravlja, nego me nitko ozbiljno ne shvaća, s obzirom na to da mi doktori neprestano govore da ću ja „sve to preživjeti, jer sam još mlada.“ Moji su srčani mišić i ovojnica do sada bili upaljeni pet puta, a rečeno mi je da je prvi put bio prvi i zadnji. Nitko od javnih zdravstvenih radnika nije angažiran u aktivnom traženju odgovora što nije u redu sa mojim srcem te me sve to skupa iscrpljuje kako fizički tako i psihički.

Treba mi pomoć. Trebaju mi donacije da odem privatniku ili u neku drugu državu gdje će napraviti SVE što je moguće da se sazna što tu točno nije u redu, kako bih mogla nastaviti normalno živjeti i kako bih dobila pravu terapiju. Osim toga, ako ništa od toga neće funkcionirati, da nađem mjesto gdje mi se može napraviti operativni zahvat ako bude potrebno. Tražim pomoć, jer nakon 8 godina borbe s ovim ja stvarno više ne znam što napraviti.

Hvala vam unaprijed na pomoći kakva god ona bila!