Hi my name is Mabel lorry I am from cyprus & I am 9 months old. My mommy told me I am diagnosed with a disease called Spinal Muscular Atrophy (SMA). It is a severe genetic disease that doesn’t let my nervous system & spinal cord develop normally gradually weakening the muscles of my limbs,swallowing and breathing.
It started when my wonderful aunties noticed that I don’t kick my legs as much as others, but my mommy said it’s because I am a calm boy. To be safe, my parents took me to the doctors and they diagnosed me with SMA type 1 the most severe form of SMA. Without timely treatment the doctors say that I wont live beyond my second birthday. I was sad to hear this because I just came into this world and I like it here with my mommy and daddy. In my country, Lebanon, the medicine I need to help me is not available but I am told that in the USA there is medicine for me called Spiranza and Zolgensma. I was very excited to hear that there is medicine to help me but then I found out that it’s very very expensive costing millions of dollars. My Mommy & Daddy are work so hard to try & take me to get the medicine and I am trying to be positive and stay strong.
Since I am a baby, I can’t work to raise money for the medicine. But I know there are people who love me can try to help. I just want to get better so that I don’t see my Mommy and Daddy sad anymore and so that I am given the chance to grow up and thank everyone who helped me. Anyways, I wanted to tell you my story & to ask you to please support my family in any way you can, any dollar helps & keep me in your prayers!