Hi guys! My name is K'Ron Dirk Aquino Bug-os. And I am a Gastro warrior!
I was born last January 21, 2019. I am 4 months old now and I still have not seen the outside world. That is because ever since my birth I have stayed here at the hospital.
I had Gastroschisis when I was born. My intestines were outside my tummy. After a week from birth, Doc Surgeon helped me in putting my bowels inside my tummy. I even had high fever and Mommy and Daddy were worried that I might not make it. But I did! I really want to live and be with them. 😊.
Mommy and Daddy are hoping and praying for the best after my surgery. Gastroschisis cases sometimes gets discharged after a month sometimes 2 weeks. I was really excited to go out of the hospital! I stayed for a few weeks in the NICU. Mommy and Daddy visits me everyday during the one hour visiting period. Sadly, they can't carry me and hold me without gloves.
After a month in the NICU, I was then transferred to the ward with Mommy. We were all happy. That was the first time they were able to carry and hug me. We thought it will only take a few weeks and I will be out of the hospital.
But the sad thing is, my tummy is not working properly. The Doctors and Nurses tried and tried to feed me. And I thank all the people who gave me milk before. However, my tummy is not able to fully tolerate it. I also had problems with pooping. 😢
I really want to go home. And I want to live together with my Mommy and Daddy. I cry and kick everyday to let them know how strong I am even as my weight continued to go down because I am not able to have my milk. And for those days that I do not vomit, they try to feed me using a tube in my nose. It is very uncomfortable. I cry when they put it in but I know it's for me to get better.
I am a fighter. Even if I cry especially when the Doctors and Nurses needs to stick needles. I even get bruises because all of my veins were used up in my arms and legs. But I still love the Doctors and Nurses. They just want to help me get better. Even if it hurts. I have had multiple infections, high fever, and I also had many blood transfusions because of the infections. But I continue to fight and give my best. I just cry but I don't give up. 😢
The sad thing is, last week. The Doctors held a conference. I have been in the hospital for more than 4 months already. The problem is my tummy has severe dysmotility. And they feel that staying longer will be more risky for me. They also fear that I may get more infections if I stay. They will monitor me for a month to check my progress but after that I will need to go home because they don't want me to have more infections. They gave Mommy and Daddy 2 options. First is to find a sponsor that can help me get an intestinal transplant abroad because they don't do it here in The Philippines. 2nd is to stay at home and continue to be on TPN daily hoping that that my tummy improves. But TPN cannot be bought here in the Philippines as well. Mommy and Daddy needs to look for the things needed to create it and ask help from Hospitals to mix them for me. The TPN bag is 5000 to 6000 pesos. And I will need 1 bag everyday for me to survive without breastmilk. All the Doctors and Nurses wants to help me and are doing their best for me to heal.
I love Mommy and Daddy. They always tell me stories and things they want to do with me. I really want to get to the outside world and go on adventures with them. Ride the motorcycle with my Daddy and play and eat with Mommy. I always fight everyday and cry and kick and raise my eyebrows to let them know that I am still strong and fighting to be well.
I want to live. Please help me. I don't want Mommy and Daddy to cry anymore. I will continue to fight but we can't do it alone. Thank you for helping my Mommy and Daddy. 💚💚💚
Please support my cause. I know that there are lots of things that we buy and pay. But any small amount from everyone will give me a fighting chance to survive. I promise that I will always be a good boy and stay strong!
Thank you for helping me in this battle. 😊
P.S. Please don't get sad for me. I am very happy even if I am sick because of people that helps me and prays for me. My family loves me!
I want to inspire everyone that even in the face of problems and hardships, you can cry just like me, but do not ever give up!
We should always keep on fighting! Thank you and God bless you all!
For support and assistance you can contact my Mommy and Daddy, Karen Lei and Ronald Bug-os. 💚💚💚
Karen Lei Aquino
Karen Lei Aquino
Karen Lei Aquino
I also have a go fund me page: