Introduce us Adhitya Nugraha and Karlina Noor Pratiwi, parents of Joyana Katya Faradisya.
Joyana is our first daughter who was born on September 10, 2017 with a weight of 2.670gr long 45cm. Joyana was born with a special heart type:
Truncus Arteriosus Type I
Interrupted Aortic Arch (IAA) Type B
RV - PA Contegra
Ventricular Septal Defect (VSD) sub truncal
Patent Ductus Arteriosus (PDA)
Atrial Septal Defect (ASD) sekundum
narrowing of the lung canal
From the results of consultation with the doctor at PJN Harapan Kita, Joy should perform surgery no later than 3 months with an estimated cost of + - Rp 500jt. We plan to use BPJS for Joy's operation in PJN Harapan Kita, but get queue number 831 type A and until now we still have not got certainty when the operation schedule. During the waiting schedule, Joy was asked by his surgeon to raise BB up to 4kg (from 2.900gr at the time).
But since 31/10/2017 Joy should be treated at PICU Advent Bandung Hospital (can not use BPJS - doctors have not cooperated), because his condition continues to decline day by day while waiting for a call for surgery. Heavy workload of the heart, plus the inflammation of the right lung & BB who even decreased to 2.685 grams per day. Several times Joy had decreased the saturation value resulting in fewer oxygen levels in her blood, but Doctor did her best to prevent Joy from using ventilator breathing apparatus before surgery.
On 13/11/17 we tried to follow up Joy's surgery, according to Joy's team of doctors can be operated on but it will be done gradually because BB Joy is low enough, but until now there has not been an empty room (ICU) for Joy at PJN Harapan Kita.
Until now we still continue to collect savings so that Joy can immediately operate without having to wait for the queue, but honestly have not collected.
Without respect, here we personally ask for the humility of colleagues to be able to give prayers & help ease our burden so that Joy can immediately perform the operation.