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At 27 weeks of pregnancy, Jaxons mom received the horrible news that her unborn baby boy had 1 kidney that was alot bigger than the other. After having scans every 2 weeks monitoring his condition, doctors discovered that it had gotten worse and something needed to be done immediately. Decisions were made and at 37 weeks and 3.510kg baby Jaxon was delivered via C - section. He was rushed in for a scan on his kidneys and it was confirmed that there was a dilation (hydronephoris: Excess fluid Housed in the kidneys due to failure of correct drainage) on both of his kidneys, the left one being the worst and antibiotics were administered to prevent any infection. At 3 weeks old another scan was done, resulting in more bad news: the dilation had increased and Jaxon was referred to Professor Bhimma (a kidney specialist). At 7 weeks old Jaxon was admitted into hospital for intense and invasive testing. During the 1st week stay blood and urine samples were taken. After more scans were done, doctors discovered that he also had Megaureter (The pipe from the kidney to the bladder is too big). Jaxons ureter was 5 times too big and was entering into the bladder at the wrong angle causing restricted flow and numerous infections; which meant staying in hospital for weeks at a time, putting strain on Jaxon and his parents as they gave up so much, including his mom's job, to ensure that their baby boy got all the medical help he needed.
On 16 September 2016 Jaxon (then 7 months) had his first operation (ureter implementation) which lasted 3 hours. Due to the semi permanent catheter and the normal catheter in the tummy, he caught a huge infection which forced doctors to put him in isolation for 21 days. The next follow up scan was January 2017 where it was found that there had been no change in the hydronephoris; and if that wasn't bad enough, the doctors picked up grade 5 reflux (when urine flows back into the kidneys instead of staying in the bladder) which caused further infection, swelling and damage to an already dilated kidney. An on top of this all, Jaxons veins were too weak to find and thus experienced extreme pain every time nurses tried to administer a drip or draw blood. Because of this and the little time his small body had to recover between each hospital stay, it was decided that on 8 February 2017 a port would be fitted that ran from his archery in his heart to the top of his chest which assisted nurses in drawing blood samples and administrating antibiotics and all of his medication.
To correct the reflux problem and "hem" his Megaureter to make it medically thin as possible, Jaxon had to have a second operation on 27 February 2017 which lasted 4 hours. Recovery was hard and painful for all close to Jaxon as well as for Jaxon himself. On 30 April Jaxons parents received the wonderful news that the reflux was completely gone. But before they could celebrate, they received more bad news - there was an obstruction causing more swelling and further damage to the kidneys and his bladder walls have thickened due to the continued pressure
Nephrons (functional unit of the kidney) are at risk due to the pressure of the excess fluid housed in his kidney. As a result, they cant grow as Jaxon grows. With restricted growth, they will not be able to perform at their full potential causing his kidney functionality to decrease even more.
With 10 long hospital stays in 12 months, Jaxon parents medical savings are depleted. Medical aid refuses to pay for his chronic medication (despite doctors motivational letters to the Medical aid) they are barely managing to keep their head above water. Jaxon constantly needs tests done and in due time a kidney transplant will be needed and tissue samplingis not covered.
We desperately need your help, and would appreciate it deeply.
Successful EveningUpdate posted by Duane Bartman at 04:17 am
On the 1st June 2017, our community come together for an evening in honour of Jaxon. We had a 3 course meal serviced with wine pairing. Its amazing to see what can happen when 130 people get together to show their love and support. Humbled by all of compassion shown