Kozmetics and DMAF are coming together to help find a cure for DBA!
Please do your part and donate to this wonderful foundation and help millions who are affected by this disease and help find a cure!
Diamond Blackfan Anemia (“DBA”) is a rare blood disorder, characterized by a failure of the bone marrow (the center of the bone where blood cells are made) to produce red blood cells. This failure causes DBA patients to become severely anemic.
The Daniella Maria Arturi Foundation (DMAF) was founded by Marie and Manny Arturi in early 1996 shortly after the loss of their beautiful daughter, Daniella, who was afflicted with a rare bone marrow failure disorder called Diamond Blackfan Anemia (DBA).
The mission of the Daniella Maria Arturi Foundation (DMAF) is to stimulate and support advanced clinical and laboratory research and clinical care initiatives in Diamond Blackfan Anemia (DBA), while increasing DBA awareness among the scientific, medical, lay and government communities.
Diamond Blackfan Anemia (DBA) was first recognized as a distinct entity in 1938, although it was called “congenital hypoplastic anemia” at that time. Diamond Blackfan Anemia (“DBA”) is a rare blood disorder, characterized by a failure of the bone marrow (the center of the bone where blood cells are made) to produce red blood cells. This failure causes DBA patients to become severely anemic. It is important to note that this anemia is not the result of a deficiency in iron, vitamin B-12, folate, or erythropoietin, which is a blood cell stimulating factor. Although a number of theories regarding the cause of DBA have been proposed, it is now widely accepted that DBA is a ribosomal protein disease. The disorder results from an intrinsic progenitor cell defect in which erythroid progenitors and precursors are highly sensitive to death by apoptosis (self-destruction).In recent years, the scientific community has discovered that DBA is a ribosomal protein disease. This is a very exciting discovery for the DBA community, as it has resulted in increased scientific attention to this rare disease.
Diamond Blackfan Anemia is the preferred name for this disorder but other names for DBA include:
• Blackfan Diamond syndrome
• Congenital pure red cell aplasia
• Congenital hypoplastic anemia
• Aase syndrome (felt to be a subset of DBA in which there is a finger-like thumb and not a distinct disorder)
So let’s work together and find a cure! Please donate to DMAF! For each Candie Wrap Dress purchased (shipping included) a portion of the proceeds will go to this wonderful foundation. In addition to your purchase(s), you will receive a Kozmetics Lip Candie FREE.
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