A Battle with Chronic Kidney Disease Stage 5/ End Stage Renal Disease

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Year 2018, Ian was rushed to two different hospitals as he's complaining of shortness of breath and a feeling of drowning while lying flat on his back. He's been on his heaviest weight and showing signs of edema on his legs. A few years back from then, he underwent toe amputation due to foot ulcer and gangrene. He's been Diabetic since he was 16 years old.

We were referred to a nephrologist in a big hospital. All the tests were repeated and finally able to confirm he has a congested heart failure ( CHF) and a stage 3b Chronic Kidney Disease (CKD). No, the nephrologist did not asked him to go under emergency dialysis. He stayed for about 3-4 days and was discharged. His Cardiologist advise us that he needs to go for an Angiogram to confirm blockage and if there is, must need to go for Angioplasty.

Years passed and pandemic happened. 5 years went by, we almost thought he got Covid and a doctor prescribed him to take Remdesivir twice and then only to find out he is negative from Covid and was properly diagnosed with Pneumonia instead. He got well after that. Thank God.

Fast forward, 11th April we rused him to emergency in TMC, he recently had the worst nausea to the point he couldn't stand long on his feet and twice he almost fainted while we were dong grocery, he said he couldn't see anything, all were in white background. No, his breathing was a ok this time. Although he's been feeling more weak and tired more often. He also said he's feeling a swelling on one of his testes. I googled everything about the symptoms and was lead to 'Testicular Cancer'. He doesn't want to go to hospital for a check up, he always dread going to the hospital. The only time he would let me take him to the hospital is when he feels he no longer can't handle the pain anymore.

April 11, This time, while he is in emergency room isolation, he was told he is going to undergo an emergency dialysis. It is only then I realised and dawnedme that his CKD has now made a progress to its final stage! Chronic Kidney Disease Stage 5.


The doctor finally called me to explain they will perform a procedure and will insert an IJ Catheter on his neck for the emergency dialysis. I wasn't permitted to go inside the emergency room to be with him, but we're communicating via video call in FB. I was just in the hospital's lobby waiting for an update while he's going through series of exams again, 2D echo, blood tests, x-rays and everything else! The day after, another procedure was performed for a fistula in his arm in preparation for a continued Dialysis. This hospitalisation has cost around three hundred plus thousand pesos (P300,000).


16th April, he was finally discharged and we were able to find a nearby Dialysis Center at Novus Renal Care in Mandaluyong. He started and were coping up with the changes as a new Dilaysis patient. Everything was a struggle with changes in lifestyle and way of living. He has to allot 4-5 hours and up to 6 hours a day for his Heodialysis session 3x a week MWF schedule.

14th of May, Mother's day, he was again rused to emergency due to weakness, he has been vomiting with blood and episodes of tarry stool. he has been put in ICU for monitoring whee he spent 8 days and total of 10 days in the hospital. While in ICU he had an edoscpoy and find out he had internal bleeding. Multiple biopsies were taken from mass/lesion. Post biopsy bleeding controlled with epinephrine injection and hemoclipping (x 3 clips deployed). He also underwent blood transfusion. A total of 11 bags were given all throught his ICU stay.. He also had hospital acquired Pneumonia.

24th of May, he was discharged from the hopsital and were given instructionss for home care. The hospital bill has ballooned cost 1.4 Million pesos less 20% discount for PWD and we were able to seek assistance thorugh Guarantee Letter from PCSO for 30,000 peos. Our relatives, family, friends. and colleagues have also showed concern and has helped us too too in our plea for financial help. Our savings has been depleted with the bills and medicines from the 2 hospitalisations.

5 days after the recent confinement, 31st of May Ian has again lost his strength to stand up and unable to go to his scheduled dialysis. Since we no longer have enough funds due to his last hospitalization, we tried to bring him to na nearby public hospital but they have advised to bring him back to TMC as he already had his history there and the doctor said the hospital is not equipped with the Diaysis machine needed for his medical attention.

So off we go to VRP hospital here in Mandaluyong, It is also a private hospital but much nearer to our home. This time his Heglobin again dropped off and he had another blood transfusion. Another things is ,he tested for postive this time from COVID upon the RT PCR examination done as a protocol. He may have caught it during his confirment at The Medical City where he also had hospital acquired Pneumonia while in ICU.

His current running bill is almost half a million ( 500,000 pesos) With the previous hospitalisations we are in dire need for additional funds to settle his bills and for his continued and ongoing medications. We still have our high hopes that he can go through Kidney Transplant in the future. Ian is 45 years old, we have 2 kids, 19 years old, a Psychology major student in FEU and 17 years old a senior high school student in Hulo Integrated School. I am currently working as VA and trying to make ends meet.

Ian's only wish is to see his kids graduate in college and we all wish for him to recover and do the things he used to love to do like cooking, biking and be as mobile as he used to be before Chronic Kdney Disease took off all his might and strength. We will be forever be grateful for all the help and support, financial assistance and prayers for him to get well. God is good and all glory in his name.

You may donate to below bank details:

BPI Account:
Account name:LOURDES OCZON

Account Number: 4169-3133-99

GCASH: (LOURDES O. ) 09178964011


PayPal Account: [email protected]

Organizer

A mom of two and a juggler of online and offline world activity. You can find me more here: https://www.lifeinthiswonderfulworld.com/

A mom of two and a juggler of online and offline world activity. You can find me more here: https://www.lifeinthiswonderfulworld.com/

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  • Genia Balaguer
  • Donated on Jun 08, 2023
$5.00

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  • Genia Balaguer
  • Donated on Jun 08, 2023
$5.00

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