Max was born with complex cardiac condition, specifically a diagnosis of Hypoplastic Left Heart Syndrome.It means he lives with an half of heart.He had his first surgery at Birmingham Children's Hospital in 3 days and again at 3 months and 4 years.He has had many cardiac catheters and about 20 general anestehics( or more).As there is not a cure for the condition, he may need a heart transplant at some point during his lifetime.He suffers from recurring infections requiring antibiotic administration, fatigues and becomes breathless easily.He is at risk of developing endocarditis. Max oxygen level is 80-85%.It affects his whole body.We have noticed that he has a problem with memory.He suffers from horrible migraines. When distressed Max's oxygen level is affected and he can turn blue. Max's extensive periods in hospitals are thought to have contributed to his developmental delay.He is underweight and takes pro-cal boost. He is only able to walk a short distance as he quickly fatigues.He uses a pediactrician buggy for longer distance.He is less active than other children his age. We do not know tomorrow.We live day after day.Max can have a heart attact, stroke or never wake up.He has had many complications after the last surgery.He lives with only two chambers and 3 stents put around heart.
Why do I need to raise money? At first I'm fed up with charities. I have asked about help many times without positive results. I will not ask again.IMax takes many medicines.One of them is Warafin.I have to travel every week or two weeks to check his blood.If we bought a special machine for him our life would be a bit easier.
Max has many dreams. I hope I can make his dream come true.
I will be grateful for any help xxx