My friend Kate has a rare form of cancer. She has spent her life serving others and now her life is falling apart in multiple ways... not the least of which is what's happening to her body. Below is a rant about what's happening to her body.
Here is what we can do: help her with a donation to a) cover some medical expenses; b) help her move because she can no longer afford her rent; c) help support her, since she can no longer work as a paramedic.
"I'm about to start radiation therapy AGAIN for my cutaneous t-cell lymphoma folliculopathic mycosis fungoides. What about folliculopathic mycosis fungoides awareness? What about that? What about all of us who end up with some crazy-ass one-in-a million form of cancer that DOESN'T have marathons or cancer-walks or t-shirts, bumper-stickers or celebrity spokespeople who wear ribbons on their academy award dresses? What about those of us who spend the late night hours scouring the internet for ANY information at all about our disease because no one has it? Who the hell is aware of what it's like to find one study from 1992 conducted in Sweden that has determined that you've got 9 years left to live? Or what it's like to have "friends and family" completely blow off the fact that you have cancer because it's so rare that it doesn't sound like a legitimate disease? Anyone want to gain some awareness of what it's like to walk around with cancer of the face and see people staring at the bright red lesions and rashes all over your face -- obviously wondering what the hell is wrong with you -- but they won't know because they'll never ask and no actor has ever stepped up to a podium and said "Ladies and Gentlemen... I have follicular pathic mycosis fungoides -- my radiation therapist is going to have to jam metal shields under my eye-lids to prevent cataracts during radiation therapy. There's a good chance I'll lose my eyelashes and eyebrows. My salivary glands may never work again. I'm at increased risk of tooth decay and the 'averge' survivability is 15 years." Let me tell you what it's like when no spell-checker on EARTH recognizes your disease."