Haydn was born prematurely at 26 weeks. He spent almost a month in NICU and a further two and a half months in SCBU. After a very rocky start all seemed to be relatively well, and he eventually began to crawl at 20 months. However, when he didn’t start walking questions were raised. Several investigations later, and after a seemingly endless wait, he has recently been diagnosed with Spastic Diplegic Cerebral Palsy which was the result of a Grade 2 intraventricular haemorrhage he had shortly after birth.
The full extent of his Cerebral Palsy will only become clearer with time. This is a future his family are having to come to terms with. Haydn is currently undergoing physiotherapy and hydrotherapy but what he really needs is a more coordinated and specialist approach. Inevitably this will involve private physiotherapy tailored to his needs, along with other treatments carried out by specialists in this field. This is expensive. There is evidence to show that the more - and better quality - treatment children with Cerebral Palsy have early on, the better their outcome long term. His mum, Emma, has been unable to return to work as she has to support Haydn with daily exercises and take him to his many appointments. Therefore, money to fund the treatment he needs is tight.
We want to help! Having relatively recently started running, Caroline and I have set ourselves a challenge: the Paris marathon on April 14th 2019. 9 months ago we couldn’t run 1 mile. We would love to raise money to help with Haydn’s treatment and give him the best start to his challenging journey.
We would be so grateful for any donations for Haydn and in return we will run, walk or crawl the marathon if necessary!
Elise and Caroline