Help for Enzo on his fight with Craniopharyngioma

Update posted by Rachelle Bugash On Jan 21, 2019

Latest Update (Posted Jan 29,2019

Our little man graduated from PICU. He was transferred to a regular room last Sat afternoon. He is definitely better than days back but he is still weak, still on ngt for feeding, intensive care doctor said he might be on ngt for the rest if his life for he cant swallow on his own. He also lost his ability to control his head and body.. his movements are limited to his left hands and foot only. We are not used to seeing him in laying in bed the entire day, his tumor damaged his motor skills but we know its just temporary, he is a strong boy and a fighter. We ask for your continous prayers for our little man Enzo and our family too.

Also please continue to spread the word about our fund raising for him - we know we still have a long way to go on his medication, we appreciate your support and we hope you can continue to help our family by sharing the link too.

Thank you in advance. God Bless us all.


Day 1 at PICU (posted Jan.21,2019)

Enzo was transferred to PICU last Jan 19 afternoon, he had to be intubated because his lungs are weak due to Pneumonia. Based on the ctscan results his tumor grew bigger causing pressure on his brain, his neuro surgeon tried to initially remove 60cc of fluid from the tumor to release the pressure. He is still under observation, he had fever most part of the day, still weak but is concious and awake. We are hopefull his body will respond well to his meds esp. now that he started being fed via ngt.

Please join the family in praying for our dear Enzo especially for the ff:

For his body to respond well on his meds

For the infection to gone which causes his fever

For his lungs to be stronger

For a favorable results of the tests done on thr fluid from his tumor

Thank you and God Bless!

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