Bradley and Richard were both born with a type of muscular dystrophy that affects their skeletal muscles, as well as facial muscles. Muscular dystrophy is a process whereby your muscles waste away every second of the day. When Bradley and Richard both started to walk we noticed that they both fell a lot. It was not until Bradley was 11 years old that eventually after seeking advice from many neurologists and neurosurgeons that Bradley was eventually diagnosed with FSHD (FacioScapuloHumeral Muscular Dystrophy). https://www.musculardystrophyuk.org/about-muscle-w...The neurologist at the time said that Richard (9 years old) has the same diagnosis. Bradley is now 31 and Richard is 29.
It has not been pleasant to see our boys growing weaker each day and struggling with basic day to day things like walking, bathing themselves, feeding themselves and going to the bathroom by themselves. Both boys were very keen sportsmen and Richard managed to play interprovincial tennis up until age 18. Bradley had to have a scribe to write his matric papers and Richard managed to write matric and varsity exams but with extra time allocations.
At the age of 25 Bradley went into a wheelchair and was still able to walk short distances around the house as well as bath himself. He could not shower as he could not stand long without his legs folding underneath him. Going into a wheelchair and his muscles wasting away Bradley became a dead weight. At age 29 Bradley could no longer walk and is totally dependant on external medical equipment and the help of carers. My husband and myself have for many years been the only carers in our sons lives but as of 2 years ago had to employ a day carer and a night carer to help us with Bradley.
At age 29 Richard is still able to walk short distances and requires a wheelchair for long distances. Richard has 2 Honours Degrees in Finance and fortunately is still able to maintain a full-time job.
So now we are at the stage where we need to accommodate 2 wheelchairs at the back of our VW Kombi and have 2 swivel seats installed into the Kombi. We, as well as our carers can no longer pick our sons up in order to put them into the Kombi to transport them to the physiotherapy, biokinetics and occupational therapy treatments at a neuro treatment centre.
Our sons are young adults trapped in an old man's body.......please help us by donating towards helping us acquire the equipment that would help transport our sons with as little pain as possible as well as helping our carers not injuring themselves performing their duties